Patients Sleep apnea
Posted on 10/8/20 5:30 AM
@Allinitsleep I am so sorry to hear your sad story. A CPAP shouldn't make you feel like you're suffocating. Sounds like you might need a different mask. I started out with a pillow, but now, like you, have a full mask. I hated it for a while.
But, someone said I should try to think positively about it . . . I wear it because I get better sleep, which gives me more energy the next day; because I have a-fib and it helps keep my heart from failing; it keeps me from my breathing stopping 50 times an hour, so I stay alive! . Another option, paid for by Medicare, is an oral appliance; but it's a bulky thing you wear in your mouth (larger than those appliances kids with teeth-straightening orthodontics have!) The smaller, non-Medicare appliance costs over $3000 . . . so is beyond the reach of most of us.
Try to focus on what good things it does for you; not that you will hate it for life. That could be a very long time. You CAN do it!
Posted on 10/8/20 5:56 PM
@Ktackel If you wear a full face mask, then you shouldn't need a jaw strap. If you are a night-time mouth breather like I am, the full-face mask takes care of that problem. I know I wouldn't be able to breathe as well if I had to have my mouth closed by a strap!
Posted on 10/8/20 8:23 PM
I never had any problems getting use to it I’m in the middle of getting a newer and better model since mine is like 4 or 5 years old. I have the one using the pillow cushion over your nose always have to switch out every 2 weeks cause they start leaking that’s a bother
Posted on 11/30/20 7:11 AM
I wear a resmed Mirage FX NASAL MASK IT SMALLER THAN MY PRIVIOUS MIRAGE. It work well and Medicare has me changing the cushion every 2 weeks.
Posted on 11/30/20 9:23 PM
@helsal I have had that problem too. I fixed it using a football helmet chinstrap and some elastics. and velcro, it holds my mouth shut and I sleep with the mask without any problem.
Posted on 12/7/20 6:46 PM
After trying multiple full face masks, I am now using just nasal pillows (Resmed P30i). Almost no leakage, much more comfortable than I thought they would be and my AHI stays around 1.1 - 2.0. Sleep study was 72.5.
I think I've found the right solution for me!
Also, the sores in my mouth from the mask forcing my cheek against my teeth are starting to heal.
Posted on 12/7/20 8:51 PM
Normally, I am a very easy-going and accepting person, but that's not the case when it comes to my CPAP. I have severe SLEEP APNEA, and for years, I have tried to successfully use my mask. I take my mask off during the night without even knowing it. Therefore, I am using my mask 3 to 4 hours each night. And that's not enough. So, I have serious daytime sleepiness which gives me fatigue, brain fog, and low productivity. I have grown to hate my CPAP.
I have been exploring the Inspire system. Inspire works inside your body while you sleep. It’s a small device placed during a same-day, outpatient procedure. When you’re ready for bed, simply click the remote to turn Inspire on. While you sleep, Inspire opens your airway, allowing you to breathe normally and sleep peacefully. The Inspire system replaces the CPAP machine, masks, and tubing.
I had the surgery in June. However, I had a problem, and due to no one's fault, my system had to be removed. Unfortunately, I wasn't able to use the system long enough to see its impact and value, Despite my problem, I am going to have the surgery again in the spring. My goal is to eliminate the mask and tubing, successfully treat my sleep apnea, stop my daytime sleepiness, eliminate my fatigue and brain fog, and give me improved productivity.
Does anyone here use the Inspire system? If so, what is your feeling about the system? Do you believe it works for you? Have you had any issues with using the Inspire system. For those who don't know about Inspire, you can Google "Inspire" or "inspire sleep" or "Inspire sleep apnea.
Posted on 2/20/21 7:55 PM
I am a respiratory therapist and I only do cpap and bipap therapy for a Durable Medical Company. I tell my patients at set up baby steps in getting used to your mask/cpap//bipap and the pressure. Put it on wear it as long as you can tolerate it when you can't take it anymore take it off roll over and go to sleep, but every night set yourself short term goals to keep it on 5- 10-15 min longer if you have a real high pressure put it on when your watching tv or on the computer just to get yourself adjusted to both the mask and the pressure. I know there are compliance guidelines that all insurances require, they all follow Medicare guidelines 4 hrs or 70% of the time which is 21 out of 30 days. However, most insurance companies give you a 30 day grace period to get adjusted to the cpap/bipap, and the 4 hours does not have to be 4 continuous hours just 4 hrs in a 24 hr period of time. Of course, the goal is to put it on when you go to bed and take it off when you get up, but like I tell my patients don't beat yourself up and deprive yourself of sleep because of the machine, you have lived a few years without it so again baby steps and my compliance with my patients is > 90%. If you have any questions about masks feel free to shoot me a message.
Posted on 2/24/21 4:40 AM
@Allinitsleep It would not be so hard if the results were good. I sleep with the mask everynight and still have very bad symptoms during the day. I have been tested for narcolepsy and that has been ruled out. I was also told that I have restless leg syndrome so now I take Ropinorol and I still have symptoms that can be so bad that I am out of commission for most of the day. Sleep apnea sucks!
Posted on 4/3/21 5:05 AM
My problem is that I keep ripping off my mask while I am asleep. I wake up to find the mask on the floor. Then the rest of the day I feel like crap because I didnt get the oxygen I need. I don't know what can be done for this problem.