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Discover the experiences of our members on this page. You can filter these testimonials by disease using the search bar above. Finally, by registering, you will be able to comment on these stories and share yours to help other members!

Featured testimonials

Primary Ciliary Dyskinesia (PCD): “I've gotten better at saying ‘no, I'm actually not fine and here's why.’”

Primary ciliary dyskinesia

Primary Ciliary Dyskinesia (PCD): “I've gotten better at saying ‘no, I'm actually not fine and here's why.’”

Mar 26, 2025 • 1 Like

At 34, Michelle is redefining what it means to live with a rare chronic disease. Despite managing Primary Ciliary Dyskinesia (PCD), she works full-time in communications for a conservation charity...

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Crohn’s disease: “Resilience is about getting up each day and choosing to keep fighting, even when it feels impossible.”

Breast cancer
Crohn's disease

Crohn’s disease: “Resilience is about getting up each day and choosing to keep fighting, even when it feels impossible.”

Feb 19, 2025

For the past 16 years, Myisha—a dedicated patient advocate, registered nurse, content creator, and mother of four—has battled Crohn’s disease and multiple chronic conditions, all while using...

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The latest testimonials published

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Mar 26, 2025

Primary Ciliary Dyskinesia (PCD): “I've gotten better at saying ‘no, I'm actually not fine and here's why.’”

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Feb 19, 2025

Crohn’s disease: “Resilience is about getting up each day and choosing to keep fighting, even when it feels impossible.”

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Feb 5, 2025

The daily life of a family facing their child’s type 1 diabetes: Jessie’s story

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Jan 29, 2025

Fibromyalgia: “You are not to blame for what is happening to you.”

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Oct 29, 2024

Stroke: "I had my stroke at 30, during a long-haul flight from Cambodia to Paris."

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Oct 9, 2024

UC & IBS: “I felt like I was the only one dealing with this painful and embarrassing condition.”

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Oct 2, 2024

Type 1 Diabetes: “Diabetes is just a bump in the road, not a roadblock.”

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Sep 25, 2024

Borderline Personality Disorder: "Remember, emotions may be powerful, but they are temporary and can be managed."

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Sep 18, 2024

Type 1 Diabetes: “Since starting my fitness journey, my daily insulin intake has decreased.”

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Sep 11, 2024

Sleep Apnea: "Before CPAP, I had 33 apneas per hour."

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Sep 4, 2024

Fibromyalgia: "If you fight against the illness, you'll never move forward."

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Sep 1, 2024

PCOS: "It is essential not to get discouraged and to stay positive."

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