Patients Sleep apnea
Topic of the discussion
Posted on 5/13/21 7:32 PM
I was just diagnosed with Parkinson’s disease and was wondering if it is even helpful to keep using my machine, since it goes not help my sleep. I wake up constantly to the noise of the machine. I think I slept better before the apnea diagnosis. When I mention this to my sleep dr at apptmnts she wants me to do a another sleep study, which I’m never doing again. I have severe sleep apnea. Thank you Bea Ross
Beginning of the discussion - 5/17/21Should I keep my sleep apnea machine if it's not helping? https://www.carenity.us/forum/sleep-apnea/living-with-osteoarthritis/coping-with-additional-health-problems-3359
Posted on 5/17/21 10:30 PM
Hello BeaRoss, thank you for opening this discussion. I'm sorry to hear your CPAP isn't helping. Let me tag some other members who can possibly share their advice with you.
Hello everyone, how are you doing? What do you all think of Bea's situation? Have you ever found that your sleep apnea machine just doesn't help? What did you do about it? What would you do in Bea's situation?
@Wolgamut @lmercer111 @carolann48237 @Starr322 @Chip72 @sutschig @Norman64 @trumpet1 @GodIsGreat @JoNomas @Sassygirl1972 @wilkiet @Grands1234 @Samiam6378 @Cklyons @hensley088
Posted on 5/17/21 11:29 PM
I have struggled with my diagnosis and my machine for years. My sleep has gotten so bad that I dug out my machine after giving up on it a few years ago. The first night i tried it i was amazed that i could get through a few hours with it and i felt a little better. The second night was horrible! I knew it was loud but didn't know why until I discovered a hole in the mask. I got a memory foam mask and the next night was amazing! Then last night was awful again. I have an appointment with a specialist on Thursday and I'm praying for help.
Posted on 5/25/21 2:24 AM
I was fortunate that I noticed an improvement from day 1. How many nights have you used your machine? I've often heard it can take several weeks before you notice a difference and get used to it. Perhaps it is making a difference your body notices but you haven't improved enough to notice yet. You might want to compile a list of discussion topics prior to your appointment and listen with an open mind when your doctor explains your treatment plan and the benefits for you.
Posted on 5/27/21 8:00 AM
Whenever I was diagnosed. It took me about 6 months to get use to everything. I was waking up in the middle of the night. And it would be running and my mask would be on my pillow. This was 30 + years ago. I to have severe apnea. All I can say is keep trying. You will get used to it. Best of luck.