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  • NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?
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Living with NAFLD and NASH

NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?

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avatar Lee__R

Lee__R

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10/26/2018 at 5:08 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,337 comments posted | 17 in the Living with NAFLD and NASH group

2 of their responses were helpful to members


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One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.

What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?

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avatar Ruthie61

Ruthie61

Edited on 01/26/2019 at 1:38 AM

avatar Ruthie61

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Last activity on 03/27/2025 at 6:07 PM

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1 comment posted | 1 in the Living with NAFLD and NASH group


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 I was told in 2014 that there was a cyst on my liver, and that I had fatty liver disease. They found it when doing a PET scan to see where or if my cancer had spread, I was newly diagnosed at the time. No plan or explanations to go on, with the exception that I needed to lose weight. I have scans periodically, still a cancer patient, they say the cyst is not growing and is no big deal. They never mention the fatty liver.


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-26 01:36:18

avatar Jerilynn

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01/26/2019 at 6:19 PM

avatar Jerilynn

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Last activity on 12/23/2024 at 3:27 AM

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1 comment posted | 1 in the Living with NAFLD and NASH group


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Hello everyone I was diagnosed with NASH last year after liver biopsy. From what one been told is NASH is the second stage of NAFLD and that most doctors think NASH and NAFLD are the same but they are misinformed. NASH Is fatty liver with inflammation. There is no cure and thru they don’t know why some people NAFLD turns to NASH, and some do not. They say that only about 10% of people who have NAFLD will progress to NASH. It het frustrated they Drs just use ot yo the side and say loose weight and don’t take it seriously. 


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-26 18:19:07

avatar Onealt

Onealt

01/27/2019 at 1:25 PM

avatar Onealt

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Last activity on 03/31/2025 at 4:23 PM

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1 comment posted | 1 in the Living with NAFLD and NASH group


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Diagnosed in Feb 2018. Liver is enlarged. Liver biopsy 2/2018. Showed NASH with stage 4 fibrosis and early cirrhosis. Ultrasound showed 2cm lesion in 12/2018. MRI didn’t see lesion. Has pain. Terrible itching. No energy. Does anyone have thinking issues? Did you know this causes shrinking of brain too? Hoping to hear if anyone has itching.


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-01-27 13:25:57

avatar ShellyG

ShellyG

02/01/2019 at 6:24 AM

avatar ShellyG

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Last activity on 11/15/2022 at 9:20 PM

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Im newly diagnosed with fatty liver disease, my doctors nurse called me on the phone with no explanation or treatment not even a prognosis. All i can seem to find on the matter is diet change and exercise but i cant find a what diet im suppose to change to, does anyone know of a diet?


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-02-01 06:24:48
avatar exit

Unregistered member

02/03/2019 at 7:55 AM

Hello , 

I have been told that I have a fatty liver an it could NASH..my mother had it ..my sister has it an I have many of my family have it .. I am scared to find out if I do have it..What should I do??


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-02-03 07:55:23

avatar sweetangel3738

sweetangel3738

02/11/2019 at 7:56 PM

avatar sweetangel3738

sweetangel3738

Last activity on 03/20/2021 at 5:30 PM

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5 comments posted | 5 in the Living with NAFLD and NASH group


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@Dawnk83 that exactly what was done to me they told e to diet and exercise im like what!!! there has got to be some other things to help...and by the way i want to share something with you....heres what i been eating and it will detox the liver  like blueberries and if you like beets eat those  and garlic also helps to  according to what my mom and me researched i just thought i give you a little bit of insites sincerely dawn

See the signature

dawn m schafer


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-02-11 19:56:16

avatar Jonessrjoyce

Jonessrjoyce

02/20/2019 at 12:48 AM

avatar Jonessrjoyce

Jonessrjoyce

Last activity on 04/24/2019 at 12:43 AM

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1 comment posted | 1 in the Living with NAFLD and NASH group


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My liver is getting bigger and all the doctor can say is try to lose weight, because there isn't ant medicine to help me.  I have been trying to lose weight for 2 years  and all I can do is gain more.  I have been swelling up at times.


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-02-20 00:48:02
avatar exit

Unregistered member

02/24/2019 at 7:38 PM

I was diagnosed with a fatty liver. Sometimes I get a sharp pain on my right side and it's unbearable at times. I've tried the Mediterranean diet and I haven't lost any weight.


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-02-24 19:38:02
avatar exit

Unregistered member

02/25/2019 at 5:23 AM

My daughter was diagnosed with fatty liver several years ago. All they said was for her to lose weight also. Diagnosis came after positive hep test and they told me it could be cuz of liver. They did ultrasound and found that's what it was- false positive result for hep d/t fatty liver. She is 16 now. Anyone here have suggestions for her?


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-02-25 05:23:15

avatar Pamela63

Pamela63

02/25/2019 at 6:45 PM

avatar Pamela63

Pamela63

Last activity on 06/10/2025 at 6:52 AM

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1 comment posted | 1 in the Living with NAFLD and NASH group


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I was diagnosed with NAFLD quite a fews back and the dr also told me to lose weight. I cut out the sugar and have lost 14 pounds but I am still having pain on my right side and now I also have been diagnosed with a fatty pancreas. I havent been able to get a bioplsy done yet. Is there any meds to help with it?


NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2019-02-25 18:45:38
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