Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?

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Patients Non-alcoholic fatty liver disease and NASH

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
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Member Carenity
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I was just told that I had fatty liver disease with no exception at all.no follow up & no medication.I would love for someone,anyone would explain this to me.I'm away that I can understand.not medical terms.please.

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
Member Carenity
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I was told during a gall bladder attach at the ER!  Same for me, “you have a mass in your liver, probably just benign fat!  No explanation, no plan of care, nothing!

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
Member Carenity
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@Hidden username wow 

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
1

Member Carenity
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Same for me was given no information, no,meds, no plan of care or even what to expect.

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
Member Carenity
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I was told that for Nash there is nothing out there for me now so I was directed to a research study so that’s what I am doing now. I am a person who is helping the doctors or research company’s trying to find a solution medication that work. Now I have 11 months on a med called selonsitib.

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
Member Carenity
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@Hidden username how is that medication doing for you?

I have never heard of it? Is it a drug in the experimental stage?

Do you know what it is supposed to do in regard to treating or controlling NASH?

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
Member Carenity
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Kicknit

You can google selonsitib and you will find lots on line but remember this is a drug still in experimental stages and it is not FDA approved at this time. The hope here for everyone especially the Nash patients is that the drug will help the liver heal especially when you’re at stage 4 like I am. There are other drugs out there to also In study’s so we have lots of hope today. I learned also that 800 IU of vitamin E is also   beneficial combination with proper diet and exercise. As of right now my azt and ast blood work numbers are very good so for now I will continue what’s working. Thanks 

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
1

Member Carenity
Posted on

After reading these posts I feel very fortunate to have had an excellent doctor who took a great amount of time explaining everything. I learned some time later that takeing  Allopurinol can help fatty liver disease. Does anyone else have any information about this.

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
Member Carenity
Posted on

I was diagnosed 5 years ago,,, was told nothing. What I've learned had been through my own research.

Nonalcoholic Fatty Liver: How Was Your Diagnosis Experience? Did You Get a Plan of Care? Prognosis?
2

Member Carenity
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In 2017 a small spot was seen on my liver. I was told they could biopsy if I wanted however the procedure causes a lot of bleeding. My other option was to rescan in 6months. Because i had already been in the hospital for 3days. I was ready to go home so decided to rescan in 6 months. March 2018 had another scan that showed no changes and stated that it appeared to be Benign. September was sent to Rheumatologist who did blood work. He saw some concerns and I was sent to Hematologist/Oncologist. The Oncologists did blood work. My LDH level (lactate dehydrogenase test )was extremely high 550 . Normal is 100-190. Because of swelling in my abdomen and pain in the upper part of abdomen a ultrasound was done. The ultrasound showed that i have a Fatty Liver now. The doctor said it is very common and that almost everyone has fatty liver. No Medicine was prescribed, no tratment plan and no recommendation.