NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?

2,800 views
41 times supported
98 comments

Lee__R

Community manager

10/26/2018 at 5:08 AM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,336 comments posted | 17 in the Living with NAFLD and NASH group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.

What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?

Share your experience with others.

All comments

Go to the last comment

janewood

10/26/2018 at 8:32 PM

Good advisor

janewood

Last activity on 10/26/2018 at 8:29 PM

Joined in 2018

1 comment posted | 1 in the Living with NAFLD and NASH group

Rewards

Good Advisor
Explorer

View profileView Add a friendAdd Write

I was given no information, or told anything to do for my fatty liver disease. They just told me that it came with diabetis sometimes. Mine got so bad that it has turned into non alcoholic cyrossis of the liver.

NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis? https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547 2018-10-26 20:32:32

Lee__R

Community manager

Edited on 10/27/2018 at 3:16 AM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,336 comments posted | 17 in the Living with NAFLD and NASH group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

I am sorry to hear that @janewood‍. Unfortunately, that has been the consensus with this condition. The patients are given the diagnosis, but seldom, any more information other than that.

Thank you for sharing

kicknit

10/27/2018 at 3:32 AM

Good advisor

kicknit

Last activity on 01/06/2023 at 1:36 AM

Joined in 2018

15 comments posted | 6 in the Living with NAFLD and NASH group

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

Same here. I was told of my condition and given some medicines and then scheduled an appt. 6 months out.

I was given no prognosis... no explanation of the condition, etc. on the date of my diagnosis.

It was quite depressing.

Close all

See the responses

Rosie25

05/07/2025 at 8:19 PM

Rosie25

Last activity on 06/30/2025 at 5:50 PM

Joined in 2025

Patient, Non-alcoholic fatty liver disease and NASH since 2025
Other condition: Coronary heart disease

2 comments posted | 2 in the Living with NAFLD and NASH group

Rewards

Explorer

View profileView Add a friendAdd Write

@kicknit what medication were you given?

Hide the responses

Unregistered member

10/27/2018 at 3:40 AM

Yeah same here told me I had a fatty luver and that's it

Unregistered member

10/28/2018 at 11:18 PM

They told me in juneof 2018 that i had a fatty liver they did a biopsy on me and told me i was scare at first but i prayed on it but it still hurts

kicknit

10/29/2018 at 3:24 AM

Good advisor

kicknit

Last activity on 01/06/2023 at 1:36 AM

Joined in 2018

15 comments posted | 6 in the Living with NAFLD and NASH group

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

It is sooooo crazy to me to know that we were all just given a diagnosis and sent on our way! I wonder if this is just to NASH or if it similar for other conditions. The medical team should learn from this.

Unregistered member

11/01/2018 at 2:30 PM

I was diagnosed with liver disease 5 years ago. It healed and came back recently. Alot worse than the last time. Its causing me all kinds of other problems. I'm sick all the time. Doc is in process of trying to find out what's causing it and the severity of it.

Lee__R

Community manager

11/07/2018 at 11:31 PM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,336 comments posted | 17 in the Living with NAFLD and NASH group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

@CherylJ I am sorry to hear that it has came back recently and hope you are able to get it under control soon.

When you originally were diagnosed, did the doctor explain to you diagnosis and were you aware what to expect? Or did you feel like after the diagnosis you were more lost and confused?

Lee__R

Community manager

11/07/2018 at 11:32 PM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,336 comments posted | 17 in the Living with NAFLD and NASH group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

@kicknit Thank you for your input. It seems many of those diagnosed with NASH share a similar experience with you.

Lee__R

Community manager

11/07/2018 at 11:39 PM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,336 comments posted | 17 in the Living with NAFLD and NASH group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

Hey all - Hope you do not mind me tagging you in this; however, this si growing to be an interesting conversation and was looking for more input from our NASH members.

What has been your experience in being diagnosed with NASH?

One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.

Did you have a similar experience or did your doctor explain to you the condition? The plan of care?

@Jcmarsh‍ @Roddick4864‍ @Maybe916‍ @Lynn1957‍ @jpsmed‍ @Grasshopper77‍ @Babe20042018‍ ‍ @Pavis49‍ ‍ @Auntiemomma1‍ @Kyleigh1‍ @chelle134‍ @renashiver‍
@Cdbilly69‍ @davissontiya‍ @gbna27‍ @CraigTD‍ @Connie777rse777‍ @Suzie831‍ @WendyR‍ @Palmtree‍ @andreamartinez‍ @conniez1955‍ @Dragonsfriend‍ @Catherine11621‍ @Pillesmarie‍ ‍ @DebraShows‍ @Mandyf‍ @Marybe‍ @ShellyG‍ @Srsshult‍ @Wendyrn74‍ @FonzoC‍ @Alicia‍ @Hampton‍ @Taylor2018‍ @Cherylanncummings‍ @cupcake071180‍ @Dgeno1219‍

1
2
3
Go to

NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

Help shape the future of Carenity!

Articles to discover...