NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?
2,485 views
37 times supported
91 comments
Lee__R
Community manager
10/26/2018 at 5:08 AM
Good advisor
One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.
What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?
I was given no information, or told anything to do for my fatty liver disease. They just told me that it came with diabetis sometimes. Mine got so bad that it has turned into non alcoholic cyrossis of the liver.
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-10-26 20:32:32
Lee__R
Community manager
Edited on
10/27/2018 at 3:16 AM
Good advisor
I am sorry to hear that @janewood. Unfortunately, that has been the consensus with this condition. The patients are given the diagnosis, but seldom, any more information other than that.
Thank you for sharing
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-10-27 03:15:55
kicknit
10/27/2018 at 3:32 AM
Good advisor
Same here. I was told of my condition and given some medicines and then scheduled an appt. 6 months out.
I was given no prognosis... no explanation of the condition, etc. on the date of my diagnosis.
It was quite depressing.
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-10-27 03:32:43
Unregistered member
10/27/2018 at 3:40 AM
Yeah same here told me I had a fatty luver and that's it
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-10-27 03:40:43
AnnetteHendricks
10/28/2018 at 11:18 PM
They told me in juneof 2018 that i had a fatty liver they did a biopsy on me and told me i was scare at first but i prayed on it but it still hurts
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-10-28 23:18:55
kicknit
10/29/2018 at 3:24 AM
Good advisor
It is sooooo crazy to me to know that we were all just given a diagnosis and sent on our way! I wonder if this is just to NASH or if it similar for other conditions. The medical team should learn from this.
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-10-29 03:24:49
CherylJ
11/01/2018 at 2:30 PM
I was diagnosed with liver disease 5 years ago. It healed and came back recently. Alot worse than the last time. Its causing me all kinds of other problems. I'm sick all the time. Doc is in process of trying to find out what's causing it and the severity of it.
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-11-01 14:30:54
Lee__R
Community manager
11/07/2018 at 11:31 PM
Good advisor
@CherylJ I am sorry to hear that it has came back recently and hope you are able to get it under control soon.
When you originally were diagnosed, did the doctor explain to you diagnosis and were you aware what to expect? Or did you feel like after the diagnosis you were more lost and confused?
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-11-07 23:31:46
Lee__R
Community manager
11/07/2018 at 11:32 PM
Good advisor
@kicknit Thank you for your input. It seems many of those diagnosed with NASH share a similar experience with you.
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-11-07 23:32:25
Lee__R
Community manager
11/07/2018 at 11:39 PM
Good advisor
Hey all - Hope you do not mind me tagging you in this; however, this si growing to be an interesting conversation and was looking for more input from our NASH members.
What has been your experience in being diagnosed with NASH?
One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.
Did you have a similar experience or did your doctor explain to you the condition? The plan of care?
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?https://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-5472018-11-07 23:39:07
Lee__R
Community managerGood advisor
One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.
What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?
Share your experience with others.