Rhupus syndrome
Forum

Current topics:

• - Biotherapy and COVID-19: Has the virus had an impact on your treatment?
  Hello everyone, How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune response (immunosuppressants).Patients who use these treatments
• - Coronavirus and immune system and inflammatory diseases - questions, concerns, tips?
  Hello everyone, Since the Coronavirus epidemic concerns many Americans (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of immu
• - feeling trapped by the ticking time bomb quality of life with my lupus family tree
  As of yet I have yet to be diagnosed with lupus. I clicked the interested button because there was nothing else that fit my situation better. concerned and stressed out would be a better fit. both my

Current topics:

• - How to recognize a lupus flare-up?
  Hi, I was diagnosed about  9 months ago now and I'm still having kind of a hard time recognizing a flare-up before it happens... I don't have a fever or any major joint pain, just stiff fingers in
• - How do you manage your lupus fatigue?
  Hello everyone,  I am fairly new here and diagnosed with lupus. Over the last few months I have become increasingly fatigued. I need to speak with my doctor about this and plan on doing so, but I re
• - Has lupus impacted your working life?
  Hi everyone, I know each person's experience with lupus is different, but as one with lupus who still works - I am lucky to work from home - Working from home, I still have to take breaks often, but

Current topics:

Current topics:

• - What treatments have you tried for lupus? What works for you?
  Hi all, Just out of curiousity what medications have you tried for Lupus and what has been your success in terms of the treatment as in regard to side-effects. I have been on Plaquenil; however, I
• - How do you handle your Lupus flare-ups?
   Hi everyone, I was hoping to get some of your opinions/perspectives. I've had lupus for a while now, but these past few months have been exceptionally bad. I'm on plaquenil and a small dose of corti
• - Alternative treatments besides prescriptions?
  I am interested in knowing what treatments people have tried to cure or control their lupus other than prescription medicines. I am tired of medicines and have been reading about alternative treatmen

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - Did or do you have any fears about the COVID-19 vaccine?
  Many people are not taking the vaccine because. They dont know the long term affects of the vaccine
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - Have you had any side effects from the COVID vaccine?
  I got mine Wednesday and have had several reactions. None on injection day but the day after, sore arm, dry mouth. Next day felt fine! Day after that had chills body aches and fever, stayed in bed and