Rhupus syndrome
Forum

Current topics:

• - Biotherapy and COVID-19: Has the virus had an impact on your treatment?
  Hello everyone, How are you doing? Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune response (immunosuppressants).Patients who use these treatments
• - Coronavirus and immune system and inflammatory diseases - questions, concerns, tips?
  Hello everyone, Since the Coronavirus epidemic concerns many Americans (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of immu
• - feeling trapped by the ticking time bomb quality of life with my lupus family tree
  As of yet I have yet to be diagnosed with lupus. I clicked the interested button because there was nothing else that fit my situation better. concerned and stressed out would be a better fit. both my

Current topics:

• - Has lupus impacted your working life?
  Hi everyone, I know each person's experience with lupus is different, but as one with lupus who still works - I am lucky to work from home - Working from home, I still have to take breaks often, but
• - Lupus and pregnancy: Share your experience!
  I was diagnosed with lupus (SLE) about 20 years ago and am 37. My husband and I have been trying to conceive for the past 3.5 years. We got pregnant a little over a year ago but had a missed miscarria
• - COVID-19 and Lupus: How is the pandemic impacting your lupus?
  The coronavirus pandemic has spread very rapidly and some strict new measures have been taken in recent days by state and federal governments. Covid-19 affects everyone, regardless of age or backgroun

Current topics:

Current topics:

• - What treatments have you tried for lupus? What works for you?
  Hi all, Just out of curiousity what medications have you tried for Lupus and what has been your success in terms of the treatment as in regard to side-effects. I have been on Plaquenil; however, I
• - How do you handle your Lupus flare-ups?
   Hi everyone, I was hoping to get some of your opinions/perspectives. I've had lupus for a while now, but these past few months have been exceptionally bad. I'm on plaquenil and a small dose of corti
• - Alternative treatments besides prescriptions?
  I am interested in knowing what treatments people have tried to cure or control their lupus other than prescription medicines. I am tired of medicines and have been reading about alternative treatmen

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - Coronavirus: How to keep busy while social distancing?
  Hello everyone,  During this Coronavirus pandemic, many of us have been advised to "social distance" ourselves, limiting contact with strangers, friends and even in some cases, family. No more trips
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - COVID-19 masks: Are you going to continue wearing a mask after you've had the vaccine?
  Hello everyone, I hope you're doing well. As the discussions continue on the end of the COVID-19 lockdown and social distancing measures, you may have some questions about the use of protective fa