Topic of the discussion
Posted on 9/29/19 12:18 AM
Welcome to the Lupus community!
It is not easy to know the experiences of each member or who to reach out to for advice. However, knowing that another person with Lupus shares similar experiences or concerns as you can be a relief, and establishing communication between each other can prove to be very valuable.
Therefore. we encourage all members in the Lupus community to introduce themselves to help establish such connections!
To introduce yourself to the community, share a little about your story, when you were diagnosed, experiences with lupus, concerns, etc.
Beginning of the discussion - 9/29/19What is your lupus story? Let's share! https://www.carenity.us/forum/lupus/living-with-lupus/welcome-to-the-lupus-community-1269
Posted on 9/29/19 2:27 AM
Hi everyone. I have been a part of this community since 2018 and enjoy meeting everyone and talking to everyone. I am diagnosed with lupus, Crohn's, and depression... so you can say I have a little of it all.
I have been diagnosed with lupus since 2012. I experience great joint pain in my joints, which also become swollen - mainly elbows and knees from lupus. I have tried acupuncture to no avail for this.
I am trying to keep the inflammation down in my body as much as I can through having as much anti-inflammatory foods and supplements in my diet as lupus and Crohn's is making my body inflamed always.
I look forward to meeting you all. I go through depression a lot because of everything... but let's be strong together.
Posted on 12/10/19 9:39 PM
Hello my name is Sherri J have had Lupus for many years. But lately I have had blisters that turn hard in time. It itches and is giving me lot's of grief. What is this? Thank you
Posted on 6/30/20 5:54 PM
How are you doing? Have you seen this discussion?
What is your lupus story? How were you diagnosed? How are you doing now? What medications or treatments have you tried? Feel free to introduce yourself and share your story, your advice, or your support here!
@ac8 @Taniya @moral201 @Soleana @kp73palmer @Tranthamkayla90 @Caletha39 @Mald5356 @Lisavas2566 @Dahunez @LDaley @Emmabrim39! @Anume4Saara @Sschiefelbein @rburwell @Sweetleaf @Gcardona
Posted on 7/3/20 5:55 PM
@Courtney_J Hi, I've had lupus for what seems like FOREVER now. I was diagnosed after having months of unexplained joint swelling and pain and fevers. It took a while to figure out. I've been on plaquenil for a while now so it's doing it's job for the most part but when I first started it was ROUGH and it took months for it to kick in. My lupus really has an impact on my mental health so I'm also on depression medication.
I guess if I had advice I'd say to make sure you take care of your mental health, chronic illness and especially lupus are SO hard on us, so make sure you get help if you need it!
Posted on 7/4/20 6:09 AM
hello everyone. i got diagnosed with lupus my freshman year of high school. and i just graduated this year, so that's pretty cool. i actually got diagnosed on accident. i lied and said i had a headache and i was dizzy so i could get out of going to the pep rally at my school. tests were done and my bloodwork actually showed low platelets. and after months of doctors i got diagnosed with lupus.
i also have depression, anxiety, and ptsd. so i'm really just Killing It with the mental health. i'm going thru a little bit of an identity crisis right now. i've become dependent on people, not only because of my illness. and i am being better about that. it's because 'm chasing something that i'm never gonna get.
i'm chasing what life is like before i got sick. when shit was good yanno? but i've been in therapy for a loooong time now. and it really does help to talk to someone. (i also went to the beach yesterday and i got burnt so.... can't wait to see how that plays out in a couple days hahaha)