What treatments have you tried for lupus? What works for you?

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mvn481

02/08/2019 at 11:32 PM

Hi all,

Just out of curiousity what medications have you tried for Lupus and what has been your success in terms of the treatment as in regard to side-effects.

I have been on Plaquenil; however, I am getting recently an increase in hair loss, stomach pain, and I feel I am much more irritable now.

Has anyone tried Aralen? Do you continue steroids?

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Lee__R

Community manager

02/08/2019 at 11:50 PM

Hey members, does anyone have any input? Could be a good discussion where you can discuss Lupus medications and side-effects and how to cope with them, as I have seen various posts recently concerning this topic. Hope you do not mind me tagging you to bring this new discussion to your attention.

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What treatments have you tried for lupus? What works for you? https://www.carenity.us/forum/lupus/your-opinion-on-lupus-treatment/which-medications-have-you-tried-and-side-effects-756 2019-02-08 23:50:13

Bkeilholtz

02/13/2019 at 4:47 AM

It's hard to try different medications and cope with them. I take 11 to 14 meds a day. Everyday is completely different for me. I started benlesta infusions 5 months ago and honestly idk if they are helping or not. Guess it's coming with time. Has anyone else been through the infusions,?

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Brittany Keilholtz

Lee__R

Community manager

02/21/2019 at 1:38 AM

@Bkeilholtz‍ thank you for sharing... do you feel each medicine affects you differently each day? Do you take the medicines at the same time and same order daily?

eleanee

04/06/2019 at 5:08 AM

Hi mvn481,

I also experience some side effects with Plaquenil while others told me this med helped them to control their inflammation. Like you, I suffer from hair loss and dry eyes. I asked my rheumatologist already, he adjusted the dosage and told me to eat vitamin and omega3-s rich foods.

Courtney_J

Community manager

03/31/2021 at 8:47 PM

Hi everyone,

Have you seen this older discussion? emoticon cute

As you know, treatment for lupus tends to depend on the signs and symptoms you're experiencing. Typically treatment includes one or a combination of: NSAIDs, antimalarial drugs, corticosteroids, immunosuppressants, and biologics.

What treatments have you tried for your lupus? What has worked for you? Have you had to switch medications or treatments over the years? Have you had any side effects?
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