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Patients Lupus

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Member Carenity
Posted on

Hi all,

Just out of curiousity what medications have you tried for Lupus and what has been your success in terms of the treatment as in regard to side-effects.

I have been on Plaquenil; however, I am getting recently an increase in hair loss, stomach pain, and I feel I am much more irritable now. 

Has anyone tried Aralen? Do you continue steroids?

Beginning of the discussion - 2/8/19

Which medications have you tried and side effects
Member Carenity • Community manager
Posted on
Which medications have you tried and side effects
Member Carenity
Posted on

It's hard to try different medications and cope with them. I take 11 to 14 meds a day. Everyday is completely different for me. I started benlesta infusions 5 months ago and honestly idk if they are helping or not. Guess it's coming with time. Has anyone else been through the infusions,?

Which medications have you tried and side effects
Member Carenity • Community manager
Posted on

@Hidden username‍ thank you for sharing... do you feel each medicine affects you differently each day? Do you take the medicines at the same time and same order daily?

Which medications have you tried and side effects
Member Carenity
Posted on

Hi mvn481,

I also experience some side effects with Plaquenil while others told me this med helped them to control their inflammation. Like you, I suffer from hair loss and dry eyes. I asked my rheumatologist already, he adjusted the dosage and told me to eat vitamin and omega3-s rich foods.