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Patients Lupus

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Member Carenity • Community manager
Posted on

There are many vitamins and supplements that claim to treat or help with the symptoms of lupus. While many lupus patients show vitamin deficiency, it is not certain whether this deficiency is the cause or a symptom of the disease.

Lupus patients should be careful when purchasing vitamins and supplements off the shelves without first discussing with their doctor as some vitamins and supplements may contain additives and ingredients that may be harmful or increase the symptoms of lupus.

Below are common supplements Lupus patients take:

+ Omega 3 Fatty Acids/Fish Oil. The leading cause of mortality among lupus patients is cardiovascular disease. Supplementing patient’s diets with fish oil increases cardiovascular protection.

+ Turmeric. In one study in Iran, turmeric has been shown to help patients with lupus nephritis. Turmeric contains curcumin which inhibits tumor growth and has anti-inflammatory properties. The sample size is too small though and still needs to be further studied.

+ Vitamin D supplements. Patients who suffer from SLE often lack Vitamin D. This is because one trigger for flares is sunlight. Patients usually stay indoors, use sunscreen, or sun protective clothing to avoid flares. Without natural and artificial light, vitamin D needs to be supplemented. Lack of vitamin D often leads to bone deterioration, cardiovascular complications, and fatigue. Researchers have tried to study the effect of vitamin D, but no conclusive evidence has been found yet.

+ DHEA (Dehydroepiandrosterone) or Androstenolone. DHEA is commonly used in bodybuilding and exercise, but studies have shown that it helps regulate autoimmune activity. Lupus also decreases DHEA levels so supplementing the body with DHEA strengthens the immune system.

+ Primrose Oil. Evening primrose oil has anti-inflammatory properties and reduces tissue damage caused by lupus.

+ Green Superfood Supplements. Supplements that contain chlorella and spirulina help the body detoxify and are helpful especially against lupus nephritis.

+ MSM. Methylsulfonylmethane is anti-inflammatory and a potent detoxifying agent.

 

Have you taken any of these common supplements? If so, what was your results: any benefits noticed or side effects? What was your dosage?

 

References:

https://resources.lupus.org/entry/herbal-supplements

https://www.webmd.com/lupus/news/20071107/fish-oil-supplements-may-ease-lupus#1

https://emedicine.medscape.com/article/332244-treatment

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199565/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2701249/

http://www.nationalnutrition.ca/HEALTHCONCERNS_LUPUS.aspx

Beginning of the discussion - 9/13/18

Supplements For Lupus and Your Experience
Member Carenity • Community manager
Posted on

Hello all,

Just letting you know there is a poll going on about these supplements. Feel free to take part in the poll and document your experience with any of the supplements here. 

Let us know which supplement you tried and dosage. Any benefits? Side effects? 

I will update the forum here soon with the poll results.

Supplements For Lupus and Your Experience
Member Carenity • Community manager
Posted on

The Results are in from the poll. Thank you to all who participated. Below you will find the percent of participants that have used a particular common supplement to help treat lupus / help with the symptoms of lupus.

Vitamin D: 42% of participants
Omega 3 Fatty Acids/Fish Oil: 37% of participants
Turmeric : 21% of participants
DHEA or Androstenolone : 0%
Primrose Oil : 0%
MSM : 0%

If you participated in this poll, or even if you did not but have experience with any of these common supplements, please comment below and let us know your experience with them... good or bad.

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Supplements For Lupus and Your Experience
Member Carenity
Posted on

I use Vitamin D and Fishoil. The fishoil helps control the inflammation in my body and supposed to be healthy also for my mental health since I struggle with depression. The same is for Vitamin D... since I tend to not go out in the sun often because of lupus, I am low on vitamin D, which also impacts my health and mental health. I supplement with Vitamin D to help!

Supplements For Lupus and Your Experience
Member Carenity
Posted on

I have also incorporated turmeric into my diet by way of supplementation and adding it to my food dishes.