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  • What medication, therapy, or alt. treatment that helped the most?
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Treatments for multiple sclerosis

What medication, therapy, or alt. treatment that helped the most?

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avatar Lee__R

Lee__R

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07/23/2019 at 5:57 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,337 comments posted | 84 in the Treatments for multiple sclerosis group

2 of their responses were helpful to members


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There are various types of medications, therapies, or alternative treatments that are said to control or reduce multiple sclerosis symptoms.

Which have you found that has helped the most? What benefits have you seen?

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avatar msslady

msslady

09/21/2019 at 11:52 PM

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avatar msslady

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Last activity on 05/26/2020 at 7:09 PM

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37 comments posted | 30 in the Treatments for multiple sclerosis group


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I am taking Copaxone. I had also taken rituximab for RMS.

I have minimal side effects from the treatment... lots of fatigue and shortness of breath. But the doctor says it is working in slowing the progression. So I am hopeful it continues to do so.


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2019-09-21 23:52:07

avatar MS_283

MS_283

09/23/2019 at 2:32 AM

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avatar MS_283

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57 comments posted | 36 in the Treatments for multiple sclerosis group


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I am also on Copaxone and have not had shortness of breath as a side effect but definitely fatigue. I'm hopeful for the same@msslady 


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2019-09-23 02:32:35

avatar Cgonlag

Cgonlag

03/06/2020 at 7:58 PM

avatar Cgonlag

Cgonlag

Last activity on 06/12/2025 at 7:52 PM

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3 comments posted | 3 in the Treatments for multiple sclerosis group


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Has anyone taken Ocrevus or Gilenya? I am currently on Tysabri but I tested positive for the JC Virus so I have to switch meds. 

See the signature

Carrie


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2020-03-06 19:58:06

avatar Monkey

Monkey

03/07/2020 at 3:51 PM

avatar Monkey

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Last activity on 02/20/2021 at 5:59 AM

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8 comments posted | 8 in the Treatments for multiple sclerosis group


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@Cgonlag I do take ocrevus and it does work. but it tends to wear off at the end of 6 months. Plus when u start it fatigue is a side affect. Just makes most people sleepy

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Marcus


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2020-03-07 15:51:41

avatar Cgonlag

Cgonlag

03/17/2020 at 4:26 AM

avatar Cgonlag

Cgonlag

Last activity on 06/12/2025 at 7:52 PM

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3 comments posted | 3 in the Treatments for multiple sclerosis group


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Thank you! Had you tried any of the pill options? (If you dont mind me asking). 

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Carrie


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2020-03-17 04:26:39

avatar DCircular

DCircular

05/09/2020 at 6:49 PM

avatar DCircular

DCircular

Last activity on 10/29/2021 at 1:23 AM

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3 comments posted | 3 in the Treatments for multiple sclerosis group


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I'm currently taking Ocrevus, but I've had difficulty walking for a year now. What helps with that?


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2020-05-09 18:49:34

avatar pksouth514

pksouth514

05/13/2020 at 1:48 PM

avatar pksouth514

pksouth514

Last activity on 08/16/2020 at 3:41 PM

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2 comments posted | 2 in the Treatments for multiple sclerosis group


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I am an MS fighter of 30 years now. I have been on:

Copaxone - did fine, hated the injections

Once oral meds became available, I jumped on that opportunity

Tecfidera - had a severe allergic reaction. My face swelled up - I looked like Will Smith in the movie Hitch

Aubagio - I have been on Aubagio for about 5 years now. I love it. MRI's are showing no new lesions and RRMS has been stable.

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PKSouthgate


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2020-05-13 13:48:21

avatar DCircular

DCircular

05/14/2020 at 5:11 PM

avatar DCircular

DCircular

Last activity on 10/29/2021 at 1:23 AM

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3 comments posted | 3 in the Treatments for multiple sclerosis group


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I've had difficulty walking for a year now. I was diagnosed 2 years ago, and a pretty good, and established pool player. I'd just like to walk better again. Suggestions?


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2020-05-14 17:11:09

avatar 1988MS

1988MS

05/25/2020 at 7:17 PM

avatar 1988MS

1988MS

Last activity on 12/27/2023 at 6:49 AM

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15 comments posted | 13 in the Treatments for multiple sclerosis group


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@DCircular I have a friend from my MS group who takes Ampyra which I think is meant for walking. I'll have to ask her more about it. I don't have any experience with it myself but maybe you can ask your doctor about if it'd be a good option for you?


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2020-05-25 19:17:54

avatar DCircular

DCircular

05/25/2020 at 10:58 PM

avatar DCircular

DCircular

Last activity on 10/29/2021 at 1:23 AM

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3 comments posted | 3 in the Treatments for multiple sclerosis group


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I've taken Ampyra for some time. It initially helped me with balance, but nothing more. Walking is still a difficulty.


What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189 2020-05-25 22:58:04
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