What is the most frustrating or difficult aspect of living with MS?

567 views
9 times supported
35 comments

Courtney_J

Community manager

Edited on 08/24/2020 at 4:46 PM

Good advisor

Hi everyone,

How are you doing? emoticon cute

Adjusting to life after being diagnosed with multiple sclerosis can be challenging. It requires becoming more aware of the limitations that your body will experience and the lifestyle changes that these changes will force upon you. These adjustments my impact every aspect of everyday life; from basic mobility, to relationship dynamics with family and friends. The nuanced list goes on, but let's hear from you!

What is the most difficult or frustrating aspect of living with MS? How do you cope with this or these challenges? Is there anything you miss about your life pre-MS? Do you have any advice to share?
@Brinahbaby92‍ @dimples854‍ @makaylah76904‍ @SherryT‍ @sma5153‍ @NancyT‍ @Rayne86‍ @Jayn1122‍ @cindy.wms1962‍ @msjoye‍ @Star0789‍ @Kellyteal‍ @Emma2190‍ @PennyEllyson‍ @Shithead‍ @Russso‍ @Eistot‍ @ak2663‍ @jacquie‍ @Katrina2864‍

Feel free to share your thoughts and experience here!

Take care,
Courtney

All comments

Go to the last comment

Unregistered member

08/29/2020 at 1:11 PM

I try not to think about the things I can no longer do and make modifications so I can keep doing some of the things I enjoy. An example is Photography. I can no longer climb hills or walk on uneven ground so I had to adapt how I shoot. I also had to give up photographing HS sports. BUT I consider myself fortunate that I'm still on the right side of the grass. I will not let MS drag down my mood. When it tries to, it's very brief.

What is the most frustrating or difficult aspect of living with MS? https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-the-most-frustrating-or-difficult-aspect-of-living-with-ms-2407 2020-08-29 13:11:02

Bigkenny

09/02/2020 at 10:46 AM

So how does a person deal with haveing Ms it is so hard not to think about bad stuff and just makes you sad

Bigkenny

09/02/2020 at 10:49 AM

It Like my life is over I ask myself is this what I want to live with saddness and pain I don't know am very confused right now on how to deal with this and I don't want to think k just bein crying and unsure what to think

Bigkenny

09/02/2020 at 11:02 AM

Bigkenny

09/02/2020 at 11:37 AM

@ how do you not think about it

copa20

09/02/2020 at 3:48 PM

Good advisor

@Bigkenny Hey, I've been where you are. accepting all of this is hard and crazy overwhelming. Your life isn't over, you just may need to adapt the way you do things. Do you have any friends or family you can lean on or talk to about it? Let them know how you're feeling and ask them to help you distract yourself or clear your head. When I'm having a bad day I talk to my kids or I try to throw myself into something I love to do. I'll go for a (slow) walk just to get some air and get out of my negative space or I'll watch a show or movie with my kids or grandkids. What often starts off as a temporary distraction actually does me a lot of good. emoticon bashful

Bigkenny

09/02/2020 at 3:52 PM

I still need to figure ways out all I do right now is cry alot I saw my mom go through it when we was young it sucked my world is so much going to change I don't if I can do this to be truthful to u don't know if I want to

Bigkenny

09/02/2020 at 4:52 PM

what do I do to not think about thisfu ked up shit

Bigkenny

09/02/2020 at 4:54 PM

I just want it all to go away am telling u the doctor have to be wrong that is all thier is to it they have to

looking4

09/17/2020 at 4:39 PM

Good advisor

@Courtney_J For me I think it's the loss of independence caused by my mobility issues and other symptoms. I used to be pretty active and involved in lots of things, but now I can't do as much. A lot of things I need help with and it's frustrating.