Logo Carenity
Logo Carenity
Join now! Log in
flag us
flag fr flag en flag es flag de flag it
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Living with Multiple Sclerosis
  • MS and the Coronavirus - How are you handling the pandemic?
 Back
Living with Multiple Sclerosis

MS and the Coronavirus - How are you handling the pandemic?

  •  2,425 views
  •  49 times supported
  •  43 comments

avatar Courtney_J

Courtney_J

Community manager
03/13/2020 at 2:49 PM

Good advisor

avatar Courtney_J

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020


1,339 comments posted | 96 in the Living with Multiple Sclerosis group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Hello everyone,

Since the Coronavirus epidemic concerns many Americans (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of multiple sclerosis, as we all know that patients can be weakened by their treatments.

Have you received any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

Follow

Other groups...

Carenity News
Feedback for Carenity
Fun and games
General Topics
Good to know
Health and Medical News
How to use Carenity
Let's talk about COVID-19
Life beyond illness
The Holiday Season
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

All comments

Go to the last comment

avatar 1983Teresa

1983Teresa

03/18/2020 at 1:29 PM

avatar 1983Teresa

1983Teresa

Last activity on 05/09/2020 at 2:47 AM

Joined in 2019


5 comments posted | 2 in the Living with Multiple Sclerosis group


Rewards

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write

I have scheduled airline travel for May of this year.  Tickets paid for, deposits made.  Should I wait to cancel (heartbreaking) or wait to see if program are announced help process refunds.  I am alread compromised by ag and two separate health conditions.  The stress is triggering extreme anxietywhich is already medicated, but unresolved with current treatments.


MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-18 13:29:30

avatar broadwaylady

broadwaylady

03/18/2020 at 4:05 PM

Good advisor

avatar broadwaylady

broadwaylady

Last activity on 12/06/2022 at 3:49 PM

Joined in 2018


34 comments posted | 28 in the Living with Multiple Sclerosis group

2 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

@1983Teresa Ooh, I understand how you feel, I just had to cancel a family vacation for early next month because of this madness! I talked to my doctor and based on how the virus is developing in the US currently and how it's projected to develop, he recommended that I cancel. We're keeping me on my treatment because the side effects of stopping would have been worse for me. I'd say to ask you doctor what he thinks. I think a lot of the airlines are being reasonable with refunds and such, or at least we got lucky with ours. I've been so worried too about all that's going on that canceling was sort of a release for me. At least I know I'll be safe at home!


MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-18 16:05:23

avatar Courtney_J

Courtney_J

Community manager
03/18/2020 at 4:08 PM

Good advisor

avatar Courtney_J

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020


1,339 comments posted | 96 in the Living with Multiple Sclerosis group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

@1983Teresa @broadwaylady‍ Hello, thank you both for your comments. If you haven't seen already, yesterday we published an article that clarifies the coronavirus and the COVID-19 infection and tries to summarize some useful information and links. It may be of some help to you. I'll link it below:

Coronavirus: What do you need to know?

Take care,

Courtney

See the signature

Courtney_J, Community Manager, Carenity US


MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-18 16:08:44
avatar exit

Unregistered member

03/25/2020 at 9:08 PM

I had an appointment at Cleveland clinic on Monday that I cancelled. I really hated to cancel as I am wanting to get on the new infusions. I’ve actually cancelled all my upcoming dr appointments. My family dr is seeing me through face time. As an MS patient should I be wearing a mask if I do go out? 


MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-25 21:08:50

avatar QueenAngel55

QueenAngel55

03/27/2020 at 11:45 AM

avatar QueenAngel55

QueenAngel55

Last activity on 02/19/2025 at 4:02 AM

Joined in 2020


4 comments posted | 3 in the Living with Multiple Sclerosis group


Rewards

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write

Along with all my illnesses you don't have Normocytic Anemia amongst the list. I have it and Multiple Sclerosis,.Asthma, HBP and hypothyroid. All immun-suppressed.  I also had major spine surgery in 2018. Sometimes I wheeze due to chronic allergies. Should I get tested. I live in the state/city where the virus is moving like it's on steroids.. New Orleans. 


MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-27 11:45:58

avatar TheMSDad

TheMSDad

03/27/2020 at 3:22 PM

Good advisor

avatar TheMSDad

TheMSDad

Last activity on 10/13/2020 at 4:23 PM

Joined in 2019


17 comments posted | 15 in the Living with Multiple Sclerosis group


Rewards

  • Good Advisor

  • Contributor

  • Explorer

  • Newsfeeder


 View profileView  Add a friendAdd  Write

This whole thing with COVID-19 has thrown a wrench in all my springtime plans for my family, as well as my treatment plans. I had MRIs scheduled (which I had to cancel because my son's school closed down and I had no one to watch him), my therapy for my hip injury due to labrum tears has all been pit on hold. 

I had a spring break trip planned to surprise my son with, to take him to Great Wolf Lodge, and they emailed me last night, telling me that that they we're closing thru spring break, and my reservation will be canceled. My whole family was planning to come visit over Memorial Day weekend, and now we don't even know if that will be a possibility anymore. 

This whole thing sucks, and being on a DMT, I can't even leave the house to do anything. We have a "community spread" in our county, and I've been advised by my doctors to cut off contact with just about anyone who leaves the house. Supplies are running thin here in SE Wisconsin, and I have to use what I have to sanitize everything that comes thru the door. 

I'm starting to go a little stir crazy sitting here. My human contact is limited to my wife and my son. Thank god for video chat and video games where I can actually play with my friends occasionally. 

See the signature

TheMSDad


MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-27 15:22:09

avatar broadwaylady

broadwaylady

03/27/2020 at 8:50 PM

Good advisor

avatar broadwaylady

broadwaylady

Last activity on 12/06/2022 at 3:49 PM

Joined in 2018


34 comments posted | 28 in the Living with Multiple Sclerosis group

2 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

@Kimmiegoodwin I think the masks haven't been proven to be useful for the general population. They're mostly useful for keeping droplets from sick from getting into the air. And where possible it's important to save them for the people who are on the front lines, aka the doctors, nurses, and the infected themselves.

@QueenAngel55 That must be so scary! Have you been feeling sick or have you been in contact with anyone who's been sick?

@TheMSDad‍ I totally understand your frustration on having to cancel trips. My doctor recommended I cancel my trip for next month so I had to bite that bullet. Yes, thank goodness for modern technology! I've been able to catch up on all my shows and talk to friends across the country that haven't been able to talk to in a while. 


MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-27 20:50:48

avatar QueenAngel55

QueenAngel55

03/27/2020 at 10:57 PM

avatar QueenAngel55

QueenAngel55

Last activity on 02/19/2025 at 4:02 AM

Joined in 2020


4 comments posted | 3 in the Living with Multiple Sclerosis group


Rewards

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write
I had shortness of breath for a few days. I called my Dr who told me if it continues to go to emergency for a test. After I took the long acting inhaler the wheezing stopped. It's real hard for me to tell what is what are times due to so many auto immune at one time and the sympTom's mimic each other or other illnesses.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-27 22:57:50

avatar dawn.flach

dawn.flach

03/29/2020 at 3:46 AM

avatar dawn.flach

dawn.flach

Last activity on 04/18/2020 at 4:16 PM

Joined in 2020


1 comment posted | 1 in the Living with Multiple Sclerosis group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write
The start of my drug therapy has been postponed until June. It was to be my first treatment since being diagnosed. My question is since I haven’t done any immunosuppressing treatment am I immunocompromised just by having MS? I also have hypothyroidism. Thanks for the help and hope all are well!

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-29 03:46:58
avatar exit

Unregistered member

03/29/2020 at 2:35 PM

I flew back to Florida from Oregon last week which I wore gloves and mask !  Plus there s few people on the plane !! Once I get home and I took a hot shower ! So should I be ok ?? 


MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-1641 2020-03-29 14:35:45
  • 1
  • 2
  • 3

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Articles to discover...

Back from summer? Here’s why a gentler return to routine matters

08/30/2025 | Advice

Back from summer? Here’s why a gentler return to routine matters

Meditation for chronic illness: A beginner’s guide to healing the mind and body

08/23/2025 | Advice

Meditation for chronic illness: A beginner’s guide to healing the mind and body

Do social media promote depression?

08/22/2025 | News

Do social media promote depression?

Is sitting too much putting your health at risk? Here’s what to do about it.

08/16/2025 | Advice

Is sitting too much putting your health at risk? Here’s what to do about it.

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

02/20/2019 | Advice

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

Telemedicine: Remote examinations and operations are here!

03/11/2019 | News

Telemedicine: Remote examinations and operations are here!

Chronic fatigue: patients' experiences and solutions

04/15/2019 | Advice

Chronic fatigue: patients' experiences and solutions

Love life in the face of illness: how to cope?

02/14/2019 | Advice

Love life in the face of illness: how to cope?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

You have been subscribed

Join now! Log in

About

  • About us
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookie management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag en flag de flag es flag it

The www.carenity.us website does not constitute or replace professional medical advice.