Patients Multiple sclerosis
Topic of the discussion
Posted on 7/23/19 5:57 AM
There are various types of medications, therapies, or alternative treatments that are said to control or reduce multiple sclerosis symptoms.
Which have you found that has helped the most? What benefits have you seen?
Share and discuss with others and help share advice and support.
Beginning of the discussion - 9/21/19What medication, therapy, or alt. treatment that helped the most? https://www.carenity.us/forum/multiple-sclerosis/your-opinion-on-multiple-sclerosis-treatments/what-medication-therapy-or-alt-treatment-that-1189
Posted on 9/21/19 11:52 PM
I am taking Copaxone. I had also taken rituximab for RMS.
I have minimal side effects from the treatment... lots of fatigue and shortness of breath. But the doctor says it is working in slowing the progression. So I am hopeful it continues to do so.
Posted on 9/23/19 2:32 AM
I am also on Copaxone and have not had shortness of breath as a side effect but definitely fatigue. I'm hopeful for the same@msslady
Posted on 3/6/20 7:58 PM
Has anyone taken Ocrevus or Gilenya? I am currently on Tysabri but I tested positive for the JC Virus so I have to switch meds.
Posted on 3/7/20 3:51 PM
@Cgonlag I do take ocrevus and it does work. but it tends to wear off at the end of 6 months. Plus when u start it fatigue is a side affect. Just makes most people sleepy
Posted on 3/17/20 4:26 AM
Thank you! Had you tried any of the pill options? (If you dont mind me asking).
Posted on 5/9/20 6:49 PM
I'm currently taking Ocrevus, but I've had difficulty walking for a year now. What helps with that?
Posted on 5/13/20 1:48 PM
I am an MS fighter of 30 years now. I have been on:
Copaxone - did fine, hated the injections
Once oral meds became available, I jumped on that opportunity
Tecfidera - had a severe allergic reaction. My face swelled up - I looked like Will Smith in the movie Hitch
Aubagio - I have been on Aubagio for about 5 years now. I love it. MRI's are showing no new lesions and RRMS has been stable.
Posted on 5/14/20 5:11 PM
I've had difficulty walking for a year now. I was diagnosed 2 years ago, and a pretty good, and established pool player. I'd just like to walk better again. Suggestions?
Posted on 5/25/20 7:17 PM
@DCircular I have a friend from my MS group who takes Ampyra which I think is meant for walking. I'll have to ask her more about it. I don't have any experience with it myself but maybe you can ask your doctor about if it'd be a good option for you?