Patients Multiple sclerosis
Have you tried Ofatumumab (Kesimpta) for your MS?
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Has anyone tried Kesimpta and if so what were the outcomes?
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@Mlballard68 Hi Mlballard68, thank you for opening up this discussion. Let me tag some members who may have taken Kesimpta or may know about it.
Hello all, I hope you're doing well! Have you taken Kesimpta for your MS? If so, has it worked for you? Have you had any side effects?
@platinumputa @Nherrera4611 @HSIMMONS77 @richricha51 @Starrieone @TrivaDewan @StevenAmez @LillianTurner @AddieG45 @CRiskus @Misswp03 @Ihavenoidea @Kennyowen @brina2818 @Pelaton @inkygirl
Feel free to share your experiences here!
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Courtney_J, Community Manager, Carenity US
I thought I had heard of every MS drug but am not familiar with Kesimpta however I looked it up and read
the description. I will discuss it with my doctor at my next meeting - thanks for bringing this up.
@Pelaton I just had a meeting with my neurologist and he felt that Kesimpta was still too new.
He wants to put me on Mayzent - does anyone know anything about this medication or have any experience with it? Thanks
@Courtney_J no my Dr put me on Tysabri. Yes is has worked for me. No relapses in 3 years so far. I am glad for because my last one was awful. Hope you’re doing well.
@Mlballard68 I have been on it for about 3 years. It had been wonderful for me! No real side effects!
@Shariso3 Thank you for replying. I have just made it through the first month of treatment with Kesimpta and honestly it has been so much better for me than Copaxone and Aubagio. No side effects at all so far. I'm really happy Kesimpta so far.
@Pelaton Hello Pelaton I am sorry it has taken me so long to reply. I'm sorry but I don't know anything about Mayzent. I have started the Kesimpta and have to say that so far it has exceeded my expectations. Very few minor side effects such as a mild headache.
@geoleson Thanks for the reply and if Kesimpta doesn't work out I will try to remember Tysabri. So far Kesimpta has been a blessing.
@Mlballard68 I’m glad it is going well for you. For the headache...be sure to do a lot of water before! I try to do 6 large water bottles with electrolytes. I have found that the more hydrated I am, the better!
@Mlballard68 I was tracking Kesimpta for many months and in the process of preparing to switch from Copaxone, which I had been on for 14 years, to Ocrevus. However, the prospect of a self-injected therapy, vs. one given by infusion, and the accounts I read about the Ocrevus "Crap Gap" in Month Five of a 6-month dose, led me to decide to instead switch to Kesimpta as soon as I could after it received FDA approval in September. My doctor was supportive of my decision despite it being a new drug. I was one of the first patients at her hospital to start taking it.
I took my first dose early October and have so far taken five. I have had no injection site reactions, and couldn't tell you if it is working or not (which isn't surprising with these therapies), but I've not had any adverse affects. The dose is very small (40% what a Copaxone injection was), and taking it once a month instead of daily is such a liberating thing. My only complaint is with the poorly designed SensoReady injector. Because you have to push down to trigger it, I find it hard to keep it from being a deeper injection than a sub-cutaneous injection should have to be, and it isn't as if I haven't got experience self-injecting (I did so with the Autoject 2 pen). If Novartis provided a better injector it would be perfect. I've provided my impressions to them, figuring I was among the first to use it for this new drug and that they need this kind of feedback.
Anyway, so far, so good, but I'm eager, like you, to hear from others, knowing full well I'm an early adopter. I'd particularly like to hear from people who were in the trials over the past couple of years, as they would have the most experience and longevity on the drug.
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