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Patients Multiple sclerosis

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Member Carenity • Community manager
Posted on

Hello everyone,

Multiple Sclerosis brings a whole host of symptoms that many patients endure before being diagnosed. Some of the most common symptoms are double vision, bladder issues, pain and spasms...unfortunately, the list goes on.

What Multiple Sclerosis symptoms did you first experience? How did you manage the symptoms

Beginning of the discussion - 5/29/19

What were the first symptoms that you experienced?
Member Carenity
Posted on

I began to experience blurred vision and tingling pain.

What were the first symptoms that you experienced?
Member Carenity
Posted on

I had issues with my vision and spasms/tingling into the extremities - this was probably the earliest sign. I also lost sexual desire or low libido. Not sure if that was the MS though. 

What were the first symptoms that you experienced?
Member Carenity
Posted on

 I was diagnosed in 2013 after having my only child. She keeps me moving. She keeps me smiling and laughing. My experience with issues I believe with MS was my first day moving into college at 18. God knows

What were the first symptoms that you experienced?
Member Carenity
Posted on

Mine stsrted with fatigue which my GP gave me testoterone for.  Now I  fight wiskers all over my face. 😊  i also was walking into walls and falling a lot.

What were the first symptoms that you experienced?
Member Carenity
Posted on

Mine started with back spasms in my lower back that started when I was 19 years old but doctors did not know what was causing the problem and this went on and on for years losing jobs and just being miserable until one doctor said that's enough I and he tired of taking your money and said I am sending you two a neuro. and that doc did everything known to man to find the issue, then after all that he tells me it is not something that will kill you but you do have MS,I was 36 years old.

What were the first symptoms that you experienced?
Member Carenity
Posted on

My first symptoms were similar to a stroke. Side of face went numb and drooped. Slurring speech. Short term memory loss.

What were the first symptoms that you experienced?
Member Carenity
Posted on

I had seizures and was diagnosed with epilepsy originally. I then started to get numbness on both legs. Now my right leg is partialily paralyzed.

What were the first symptoms that you experienced?
Member Carenity
Posted on

When I was in high school in the 90s, every spring, my left leg would have the pins and needles feeling accompanied by severe migraines.  At the time, my doctors chalked it up to seasonal allergies. It wasn't until 15 years later when my left arm went numb and I thought I was having a heart attack did they finally put it all together.

What were the first symptoms that you experienced?
Member Carenity
Posted on

2015 November official diagnosis after repeated migraines, double vision and dizzy/ balance issues. The regular doctor had thought I had Vertigo, and did nothing for it. However when things got worse and my head felt like it was splitting, my fiance' took me to the ER and they did a CT Scan first on my brain then finding a spot, did a MRI and found that spot was lesions in my brain. Kept in the ER for 6 days undergoing more tests, MRI's and even a very unfun test called a Lumbar puncture. In those 6 days there, by the 2nd things got worse. I suddenly couldn't use my legs, just kept falling everytime I had tried to walk or get up.

Two months or so later, I saw a neurologist as scheduled and he told me I had MS. I had no idea what MS even was, since they do not teach about it in school.

How did I manage it? Well, I was on a boatload of different meds for a lot of different things that came with MS. Still on some of these meds but not all.

Sorry for the long post