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  • What is your MS story? Let's share!
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Living with Multiple Sclerosis

What is your MS story? Let's share!

  •  1,013 views
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avatar Lee__R

Lee__R

Community manager
09/26/2019 at 3:49 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,336 comments posted | 83 in the Living with Multiple Sclerosis group

2 of their responses were helpful to members


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Hello everyone,

Welcome to the Multiple Sclerosis community!

It is true that it is not easy to know the path / experience of each member with MS and know who to reach out to or experiencing the same as you. Trust is essential to be able to talk and share calmly, especially in a community like this.

Therefore. we encourage all members in this group to introduce themselves.

Share a little about your story, when you were diagnosed, experiences, etc. with MS to introduce yourself to the community! 

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avatar Newtoms

Newtoms

04/29/2020 at 9:27 PM

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avatar Newtoms

Newtoms

Last activity on 12/12/2020 at 8:11 PM

Joined in 2020


10 comments posted | 10 in the Living with Multiple Sclerosis group


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I'm on 8 different meds and waiting for my spinal infusions. Those are about 6 hours long 


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-04-29 21:27:16

avatar Tina010720

Tina010720

05/01/2020 at 5:12 AM

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avatar Tina010720

Tina010720

Last activity on 07/03/2020 at 7:02 PM

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8 comments posted | 8 in the Living with Multiple Sclerosis group


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Oh my.  You stay encouraged 


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-05-01 05:12:15

avatar Tina010720

Tina010720

05/01/2020 at 5:13 AM

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avatar Tina010720

Tina010720

Last activity on 07/03/2020 at 7:02 PM

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8 comments posted | 8 in the Living with Multiple Sclerosis group


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That is definitely a lot to deal with.  


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-05-01 05:13:01

avatar Newtoms

Newtoms

05/03/2020 at 4:34 AM

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avatar Newtoms

Newtoms

Last activity on 12/12/2020 at 8:11 PM

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10 comments posted | 10 in the Living with Multiple Sclerosis group


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Yes it is a lot to deal with but i do it every day and try and stay as positive as I can and for every one to 


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-05-03 04:34:17

avatar Tina010720

Tina010720

05/04/2020 at 6:44 PM

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avatar Tina010720

Tina010720

Last activity on 07/03/2020 at 7:02 PM

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8 comments posted | 8 in the Living with Multiple Sclerosis group


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Yes it is but we are strong and can make it.


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-05-04 18:44:36

avatar Newtoms

Newtoms

05/05/2020 at 5:08 PM

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avatar Newtoms

Newtoms

Last activity on 12/12/2020 at 8:11 PM

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10 comments posted | 10 in the Living with Multiple Sclerosis group


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Yes we can. It would also help us when everything starts opening back up again. 


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-05-05 17:08:15

avatar BusterBluth

BusterBluth

05/05/2020 at 9:18 PM

avatar BusterBluth

BusterBluth

Last activity on 09/17/2020 at 4:31 PM

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5 comments posted | 5 in the Living with Multiple Sclerosis group

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Hi everyone. I'm relatively recently diagnosed, so I've been a bit worried about all of this. I'm not sure what's going to happen when my state starts opening back up again. I'm a little worried about the repercussions for us with chronic conditions. Hopefully the powers that be are taking all that into account. Trying to keep a smile going though! Take care!


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-05-05 21:18:35

avatar Newtoms

Newtoms

05/06/2020 at 5:44 PM

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avatar Newtoms

Newtoms

Last activity on 12/12/2020 at 8:11 PM

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10 comments posted | 10 in the Living with Multiple Sclerosis group


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There is a lot of support here. What are your symptoms 


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-05-06 17:44:19

avatar Emma2190

Emma2190

06/20/2020 at 6:43 PM

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avatar Emma2190

Emma2190

Last activity on 07/04/2022 at 1:29 PM

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94 comments posted | 70 in the Living with Multiple Sclerosis group

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@Marques You are not alone even when you feel like you are. We all feel like this sometimes or more of us..often (myself included). Just try to keep your head up and do not give into the feeling of being hopeless or alone, even when someone does not answer it does not mean they don't care but maybe that they are trying to live their lives too with all this going on, especially with this Covid19 crap and people losing sight of what is really important in the world.

Anyways, just remember You Are Not Alone! 

Hope that helps..

See the signature

Just trying to get by..


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-06-20 18:43:06

avatar Suemango

Suemango

06/25/2020 at 5:55 AM

avatar Suemango

Suemango

Last activity on 06/25/2020 at 10:17 PM

Joined in 2020


2 comments posted | 1 in the Living with Multiple Sclerosis group


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@Tina010720 I know the world is a mess these days, but it’s important to start medication sooner rather than later.  Best of luck ton you, dear!

See the signature

Nick’s Mom


What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-06-25 05:55:35
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