Patients Multiple sclerosis
What is your MS story? Let's share!
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Welcome to the Multiple Sclerosis community!
It is true that it is not easy to know the path / experience of each member with MS and know who to reach out to or experiencing the same as you. Trust is essential to be able to talk and share calmly, especially in a community like this.
Therefore. we encourage all members in this group to introduce themselves.
Share a little about your story, when you were diagnosed, experiences, etc. with MS to introduce yourself to the community!
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Hi my name is Jamie I was diagnosed the fall of 2005, I went in with eye issues that was optic nueralgia i was diagnosed that day then had my first mri ever 5 days later.,the neurologist said if he didn't see me sitting there looking healthy he would have thought I was an 80 year old woman in a wheel chair. I was 28 and in college full time working full time abd the single mom of a seven year old. Every relapse I have ever had has affected my eyes usually diploplia (double vision) it helps to wear an eyevpatch then you can see better. I didn't know that day all the things Ms would take from me. Cognitively I'm not the same person., I can't drive.,Everytime I turn my head too quickly I get vertigo, I have neropaathy in my feet., But you have to learn how to live a new normal :) I'm on disability but I work part time. I'm sorry you were given this just do all you can for as long as you can and don't take anything for granted :)
Ty you for responding. I'm 45 and it affects my legs and right side. I have the eye problems to. It's rough to deal with some times
@Newtoms @Jcottle Hello Newtoms and Jcottle, welcome to the group! Thank you for sharing! Let me tag a few new members so they can also introduce themselves if they want!
Hello members, welcome to Carenity! Feel free to introduce yourselves to the group? When and how were you diagnosed? How are you doing now?
@AudreyDix @Cynthia2 @kiwidog117 @puffie @LadyBrook3 @Scotts @SLC76SC @Djdesmom1 @Tovahc @Neverbeenbasic @Tdollarhite @MSsucks @Apegue30 @ace2020 @Raybroske @TammyHorner
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Courtney_J, Community Manager, Carenity US
Hello my name is Katina and I was newly diagnosed 4 months ago. I am currently not on any medications right now so because of this I stay in a little pain. The bottom of my feet swells and it doesn't allow me too wear shoes. My finger tips also swells which causes problems with me writing. I have mood swings frequently. I still need assistance with things like carrying things or picking things up because I also feel with trimmers. I deal with weakness in my legs and even fell a free times. This is really a lot for me.
It's hard to get used to and you never really get used to it. I have ms in my legs and right chest and stomach now. So I'm always numb and i use a Walker to get around now. So I know exactly what you are talking about. But i still try to live as normal as I can and I just keep thinking positive and joke about my situation so that way there it doesn't get to me. I call my Walker my harley and when I finally get my wheelchair that will be my Cadillac. You can't let it beat you. You have to beat it by not letting it get to your head. I know that will be hard but you can do it.
I have all the 'tools' as they call them. I am still not on medication tight now. Due to the pandemic I haven't been out the house. It gets frustrating sometimes for me. But I rise above it all. I stay positive and stay in good spirits all the time. My kids and granddaughter are very good support and so is my man friend. They are very supportive and very helpful. My mom and brother is there always too. I trust God to bring me through this because I know he can and will.
@Newtoms I definitely can relate. My symptoms started back in June 2019 but I didn't know what it was. I had the weakness in my legs and unbalance. I fell, was in the hospital had therapy and still not aware of what was going on. I got yo a point were I couldn't walk or go to the bathroom. I couldn't get in the tub or shower. My mom and kids had to lift me and I finally couldn't take it anymore and went to the ER and that when I was kept and all the proper test was done and I was diagnosed on 1/7/2020.
@Jcottle I just turned 47 in November and I found out Jan. 7 2020. I am still trying to adjust. It gets hard sometimes but I have a great support system from my family, friends, and church. I find strength in God getting through this. I ask him everyday to continue to heal me and give my strength to keep pushing. You are going yo be just fine. When I tell you I have all the systems I fo. Vision issues, tightness on the bityine of my feet, the tips of my fingers (which makes it difficult to write) back pain, stomach issues but I am grateful to be alive.
I use a Walker to get around right now and waiting on the virus to end so I can get my wheelchair. I also have some vision issues and still trying to be as independent as I can. I live on my own so no help. But i still make it. Ms is my new normal. Ms is my new a permanent wife. And she gifted me with autoimmune disease to boot. It's rough but I'm just glad we all are doing ok. And ty for reading what I post. Please keep posting it helps ty
@Newtoms yeah we need the support of each other dealing with this. There is also a MS Society that I learned of while I was in the hospital. I was in the hospital for 2 weeks and then had therapy for 2 weeks. Now I'm in out patient therapy but it's on hold now due to the pandemic. I am still not on any medication as well. It's been 3 months so I have no choice but to trust God to keep me.
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