Getting older with MS

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MS_283

07/14/2021 at 1:01 AM

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MS_283

Last activity on 11/23/2022 at 9:27 AM

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Hi,

I've had MS for 10 years now (diagnosed in my early 30s), and I'd heard that after 55-60 MS stops being as progressive... What does that mean exactly? Does that mean it'll get better at that age? If I know that it'll eventually get better I'll be glad to have something to look forward to!

Thanks for any replies!

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Courtney_J

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07/14/2021 at 1:30 AM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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Hi @MS_283‍, thank you for opening this discussion! Let me tag some other members who can possibly share with you.

Hi everyone, how are you today? Have any of you heard about how MS can change as we age? Have any of you noticed your MS evolving as you've gotten older? Has it gotten worse? Better?
@ArturK‍ @vonstar28‍ @MSlupuswarrior‍ @JuliePlave‍ @tinawest9877‍ @JennaGreen‍ @Karen9905‍ @Nicki21‍ @Dselle00‍ @HrlyBabe4‍ @paulakasson‍ @Scotlind99‍ @Onlymwilliams‍ @KylanP‍ @Gotwle‍ @Ldough‍ @Ndinda‍ @Masseryp‍

Feel free to share here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2021-07-14 01:30:42

paulakasson

07/14/2021 at 5:02 AM

paulakasson

Last activity on 04/29/2025 at 11:27 PM

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Yes, it has gotten worse, especially my memory!

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Paula James

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2021-07-14 05:02:04

cmadsen99

08/16/2021 at 7:25 PM

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cmadsen99

Last activity on 10/07/2025 at 7:41 PM

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Actually, at sixty-one I stopped taking my Betaseron because a seventy-year-old lady I met on a cruise told me after 60 the medicine didn't do much good anymore. I was glad to hear that because I was so sick of giving myself shots every day. I am now sixty-nine and I have had no relapses. I will admit a twinge or two but I also got the with the medicine, but I still keep to all the other things I was doing for my MS.

I had the two Covid shots and I was fine no reactions.

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2021-08-16 19:25:52

DebraBeyer

08/18/2021 at 2:49 AM

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DebraBeyer

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Dx at 64,now 66 with PPMS. Miss all those great years I had bc this disease stinks. Ready for new challenge as I was bored being newly retired and can no longer golf,drive my car etc.

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2021-08-18 02:49:52

phyllis

09/13/2021 at 8:13 PM

phyllis

Last activity on 12/10/2021 at 1:41 AM

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I am 83 and have been with this for over half my life. I was getting slower at things at first, but as I grew older I lost the use of my legs. I feel completely useless. I have lost all my good friends, volunteering, and keeping in touch and isolated myself from the rest of the world,

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2021-09-13 20:13:27

Twig57

09/14/2021 at 11:33 PM

Twig57

Last activity on 09/21/2022 at 11:58 AM

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I’m 64, diagnosed over 30 years ago, and no longer taking disease modifying drugs. Unfortunately, the Secondary MS symptoms have continued to worsen. Scary and discouraging

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2021-09-14 23:33:41

MyMS55

09/18/2021 at 7:12 PM

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MyMS55

Last activity on 09/13/2025 at 10:39 PM

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I have had MS diagnosed 36 years but my first flare was 40 years ago. I'm 55 I'll be 56 in November. Started out with RMS have run the gamut on the medication. Now on my second biologic drug and I've been diagnosed now with active secondary progressive by my new neurologist. I'm slowing down unable to drive anymore. Still walk with a tall Walker and have an electric wheelchair for when I go out around town. I could look at all the things that I've lost and be sad but I look at all the things ahead the challenges are like an adventure to me. That in my relationship with the Lord keeps me going each and every day.

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Melissa Vemi

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2021-09-18 19:12:55

jannie45

02/20/2022 at 3:31 PM

jannie45

Last activity on 02/21/2022 at 6:06 AM

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@MyMS55

Oh I am feeling sorry to hear about your health. May God bless you with health.

After surgery, I used [link removed for violation of community standards] tall walker. I was a bit hesitant. I decided to give it a try. It was not fit for me because of my height and weight. Always Stand with your shoulders relaxed and your arms hanging loosely at your sides. The walker height should be at the crease of your wrist when your arm is extended.

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2022-02-20 15:31:09

MyMS55

02/20/2022 at 3:43 PM

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MyMS55

Last activity on 09/13/2025 at 10:39 PM

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I'm finding the tall Walker is very useful for me. But right now I'm waiting for a custom built electric wheelchair to replace my jazzy which makes me look like I'm riding in a child's electric wheelchair. It only comes up to the bottom of my shoulder blades so my whole upper arms and shoulders have no support. This new Walker will be very supportive and a lot better alternative.

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Melissa Vemi

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2022-02-20 15:43:36

ColeenCoon

06/20/2022 at 8:05 PM

ColeenCoon

Last activity on 05/12/2025 at 11:36 PM

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@MS_283 I am 55 I have had Ms since my teens. My MS hasn't gotten better. It depends on your medication and your Neurologist staying on top of it. @MS_283 @MS_283

Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2022-06-20 20:05:54

Getting older with MS

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