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Living with Multiple Sclerosis

Getting older with MS

  •  191 views
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avatar MS_283

MS_283

07/14/2021 at 1:01 AM

Good advisor

avatar MS_283

MS_283

Last activity on 11/23/2022 at 9:27 AM

Joined in 2018


57 comments posted | 36 in the Living with Multiple Sclerosis group


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Hi,

I've had MS for 10 years now (diagnosed in my early 30s), and I'd heard that after 55-60 MS stops being as progressive... What does that mean exactly? Does that mean it'll get better at that age? If I know that it'll eventually get better I'll be glad to have something to look forward to!

Thanks for any replies!

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avatar Twig57

Twig57

06/22/2022 at 5:25 PM

avatar Twig57

Twig57

Last activity on 09/21/2022 at 11:58 AM

Joined in 2021


3 comments posted | 3 in the Living with Multiple Sclerosis group


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Wow, this was an enlightening conversation for me. I was dx in 1986 with RRMS and abt. 16 years later SPMS was confirmed. I have felt so alone with my disease. The progression has restricted my activities and that includes those that I physically can’t do anymore as well as those that I struggle with emotionally. It’s challenging to find the joy in day to day living.

Unfortunately, my MS progression has accelerated over the years ( or at least the accumulated/compounded effect ) and it feels like a really scary, slippery slope ( Never an ideal situation for someone with balance issues ).


Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2022-06-22 17:25:22

avatar cpoetess53

cpoetess53

07/11/2022 at 4:23 PM

avatar cpoetess53

cpoetess53

Last activity on 08/05/2022 at 2:26 PM

Joined in 2020


4 comments posted | 4 in the Living with Multiple Sclerosis group


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I wish I knew! I am off meds for six months because the side effects of the Tecfidera caused me problems of severe itching and a buzz like sensation around my head and ears and face. It also cause me to have 40 percent reading for the first time of JVC virus which can become problematic and the low white blood count. So I am now waiting for another MRI and another DMT, the doctor suggest possibly Avonex . Needle fatigue for me again. Since I was taken off the DMT my symptoms are awful and I am really having walking issues and balance issues, lots of spasms, pain and no energy to speak of.


Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2022-07-11 16:23:48

avatar donmamoris

donmamoris

08/19/2022 at 4:55 PM

avatar donmamoris

donmamoris

Last activity on 08/19/2022 at 4:53 PM

Joined in 2022


1 comment posted | 1 in the Living with Multiple Sclerosis group


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The doctors don’t have answers. I have relapse remitting MS- I don’t take any medications for MS because I found they made me worse. When on the drug I became blind and paralyzed every 4 months like clockwork … I’d get better after a month or two and the cycle continued for years until I stopped taking their medications. And started on herbal tincture from Health Herbs Clinic I have not been paralyzed or blind since. I am a “walking miracle” because I barely suffer symptoms anymore. Natural Medicines, meditations and Ayurvedic therapies from Health Herbs Clinic has helped me completely reverse my MS,  I live a more productive life. Thank you for giving those of us with Multiple sclerosis a new hope. Google healthherbsclinic . co m 


Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2022-08-19 16:55:06

avatar GloriaF

GloriaF

09/13/2022 at 12:28 AM

avatar GloriaF

GloriaF

Last activity on 09/28/2022 at 6:25 AM

Joined in 2021


4 comments posted | 3 in the Living with Multiple Sclerosis group


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Hello....I was diagnosed at age 40 & I'm 69 in October, so uou can see I've had several yrs of this. I have RRMS & started Avonex at age 42...here's my story about the subject. When I was 55 yrs old, my Dr offered the option of stopping the Avonex shots. He relapses generally stop in the 50yr old range. There was no change in my MRI's in 10 yrs & thought I would remain stable. However, he offered NO guarantees & that it was my choice. I said "HELL YES, I'LL STOP IT"!!!! Those needles were intramuscular & I hated giving myself the shots....so, I stopped the shots that very day. Ok, it's 14 years later & I just had new MRI's taken last year & still no change since my early 40's! That's my story about this...I think progressive MS might be different, But, I'm not cured...I still have all the disabilities that my first few exacerbations (they were doosies) left me with. They seem to worsen with age.anyway, I hope this helped!!


Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2022-09-13 00:28:58

avatar Micheleegarvey

Micheleegarvey

11/16/2022 at 2:11 PM

avatar Micheleegarvey

Micheleegarvey

Last activity on 11/16/2022 at 7:34 AM

Joined in 2022


7 comments posted | 5 in the Living with Multiple Sclerosis group


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At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain or tremors. family doctor started me on Health Herbs Clinic Parkinson's Disease Herbal mixture, 2 months into treatment I improved dramatically. At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain or tremors. visit healthherbsclinic . c o m


Getting older with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/getting-older-with-ms-3553 2022-11-16 14:11:25
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