Patients Ankylosing spondylitis
Posted on 3/1/19 5:25 PM
@LiciaBrady LiciaBrady, it does get better after the initial shock wears off. I was experiencing the impacts of AS for about 5-6 years before be officially diagnosed. I was depressed for a couple of years thinking I was not going to get past 40. I'm 64 now. You will learn what you can and cannot do quickly. Listen to your body and it will tell you your limitations. Stretching is a good thing, and a great therapy. If you were active before AS, it will be disheartening if you try to do some of those thing later. For me it meant no more bicycling or swimming (face down).
Posted on 3/1/19 5:27 PM
@AS1218 AS1218, search for an anti-gravity chair. They are great. It takes the pressure off your spine.
Posted on 3/2/19 1:36 AM
@JTom4cats Do you have one you recommend?
Are they also suitable for those without AS?
Posted on 3/2/19 1:38 AM
@MeganF what dosage of tumeric do you take? How many times a day? I have tried it and I felt I never felt any benefits? Do you think the apple cider vinegar really helps?
Posted on 3/2/19 3:02 AM
@AS1218 i cook with a lot of tumeric and take 1 1000mg/day. I drink 1 tablespoon of apple cider vinegar in water 1 time/day. I will take more than this if i feel worse. Seems to help! my acupuncturist told me to drink baking soda in water to help with inflammation. seems to help as well. Its so tough with AS though i feel since its hard to pinpoint what is actually helping. Maybe its a combination of it all? if i didnt do these things would i feel even worse??
what i do know NOT to do is go to a chiropractor. before i was diagnosed, i thought my back hurt and just needed adjustments. I would be on table crying since it hurt so bad. After getting diagnosed my doctor said that is the worst thing you can do for it. Oops!!! Also massages can make me feel bad afterwards as well. I know diet high in sugar isnt good for inflammation, stinks cause i love sweets!! anyone else know what NOT to do that makes AS worse?
Posted on 3/2/19 5:26 PM
@AS1218 I bought a Perfect Chair 10-15 years ago. It is still going strong. Very comfortable.
Posted on 3/26/19 2:06 PM
@MeganF I tried CBD but it did nothing for my pain. I’m curious, how does the acupuncture help? Cymbalta just made me more depressed. One of my dr’s tried me on Lyrica and Gabapentin for pain but they didn’t work for me but might help someone else. They are called DMARDS which is an anti inflammatory medicine one step above ibuprofen type meds ( just in case anyone isn’t familiar with them). I also use biofreeze on my hot spots. That helps for a few hours. You can get it at any drugstore.
Posted on 3/26/19 2:12 PM
@JTom4cats thank you for sharing that. I was diagnosed a year ago. It explained what has been going on with me for a few years now. I can tell it’s progressing and hearing you say that you too can’t do like you used to gives me a sigh of relief. I’ve been feeling terribly guilty about my inability to do things like I used. It makes me sad and depressed. I’m struggling with acceptance about all of this.
Posted on 3/26/19 2:21 PM
@MeganF I’ve been going to a chiropractor for years! That’s good to know because maybe that has a contributing factor to my pain.
Posted on 3/27/19 3:48 PM
@AS1218 I was treated with both Lyrica and Gabapentine for nerve pain. It didn’t help me at the time because I hadn’t been diagnosed with my AS yet. Now that I’m taking Cosentyx it has reduced quite a bit. Maybe one of those meds might work for you. Just a thought