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  • What is your ankylosing spondylitis story? Let's share!
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Living with ankylosing spondylitis

What is your ankylosing spondylitis story? Let's share!

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avatar Courtney_J

Courtney_J

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07/20/2020 at 12:00 AM

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avatar Courtney_J

Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

Joined in 2020


1,339 comments posted | 23 in the Living with ankylosing spondylitis group

6 of their responses were helpful to members


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Hello everyone,

How are you today? emoticon cute

I thought I would open this discussion so that we can get to know one another better!

So, what is your ankylosing spondylitis story? When and how were you diagnosed? Did you receive your diagnosis right away or did it take multiple doctors to diagnose your AS? What treatments have you tried and how are you doing today? Do you have any advice to share with someone newly diagnosed with AS?
@Drfootball‍ @brownie17‍ @Kmartin143‍ @pnj0113‍ @Mary1954‍ @Shadora‍ @Dyllan‍ @Justmichelle91466‍ @Jodyolson69‍ @Jillybug‍ @toniboroni123‍ @Wiederich‍ @DiannePunky‍ @bhoney4829‍ @Kaykayloveee‍ @jford76‍ @Claracaïl‍ @joslynbauer‍ 

Feel free to share your story here!

Take care,
Courtney

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avatar SouthernBelle

SouthernBelle

07/21/2020 at 6:48 PM

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avatar SouthernBelle

SouthernBelle

Last activity on 07/21/2020 at 6:27 PM

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7 comments posted | 6 in the Living with ankylosing spondylitis group


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@Courtney_J Hi Courtney, thanks for keeping us busy on here! I was diagnosed about 10 years ago now in my 40's. I had been having a lot of pain and stiffness in my lower back over the years and eventually it got to the point where I went to the doctor for it. Low and behold, after a few scans and things they told me I had AS! I'd never even heard of it. I'm currently taking Cosentyx and it's been really great for me. 


What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2020-07-21 18:48:47

avatar EmilyJP

EmilyJP

07/23/2020 at 6:47 PM

avatar EmilyJP

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Last activity on 11/03/2023 at 1:19 PM

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11 comments posted | 9 in the Living with ankylosing spondylitis group


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@Courtney_J I was just diagnosed a few weeks ago. I'd been having severe back and neck pain. I assumed that it was from my years of dance as a kid and teen or from scoliosis, so I was shocked when they told me what it was. I've started taking some prescription NSAIDs and I'll be starting physical therapy and some yoga classes soon.

 


What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2020-07-23 18:47:31

avatar Somya.P

Somya.P

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Edited on 09/27/2023 at 5:58 PM

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avatar Somya.P

Somya.P

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Last activity on 10/17/2025 at 11:33 AM

Joined in 2023


772 comments posted | 12 in the Living with ankylosing spondylitis group

24 of their responses were helpful to members


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Hello, everyone! How are you doing today? 😊

Let me go ahead and revive this discussion with input from some of our new members:

@Mariben @Juzzdabomb1 @Msmothers72 @Ivysky24 @Lovinnerdythings @Pattie67 @Valentina @RJWysocki @Anna2641!! @Aubbie @Tina63 @Tmohrdonohue @Char4237 @Gaya1299 @hgraham1987 @Auriahem @Jakette @Laurie2172 @ShirtMac @Lilly1999 @LisaBell1969 @agrayson5287 @jmjj2456 @desiree7799 @Toni660 @Bearmom @MaryleePA @catherene @Odessa @MBWhitehouse @Ranlymberis @Jackieelkins79 @Kristie68 @NancyB @Gdepozsgay @lucasj @TerriJeanne @MsDiagnosed @Lonnie1 @Lmg21532 @Babegurl17 @Katkat @antonia3 @Nettyfitz @mariannamay @AdelevS @Iainrocks @Perm111 @MandyD @Snolen @MultiXx @Leonardotrue @FelinaStolk @meremesnell @Marns1978 @empengui @TerryReed @bitmap @Leahr215

Take care and have a wonderful day! 🌼

Somya from the Carenity team

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Somya from the Carenity team


What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2023-09-27 17:58:21

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avatar ordinaryheath

ordinaryheath

Edited on 03/25/2024 at 2:09 PM

avatar ordinaryheath

ordinaryheath

Last activity on 03/25/2024 at 9:49 AM

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1 comment posted | 1 in the Living with ankylosing spondylitis group


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@Somya.P [This content has been moderated by an administrator] 

I'm new here.


What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2024-03-25 09:52:21

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avatar edprofess

edprofess

Edited on 07/14/2025 at 9:40 AM

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edprofess

Last activity on 07/14/2025 at 9:39 AM

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1 comment posted | 1 in the Living with ankylosing spondylitis group


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@Fabbonusmom @rfhernandez01 @monkey mart @asaan32 @rgalarza2 @AS1218


What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2024-05-29 10:48:15

avatar anyaburke

anyaburke

Edited on 06/11/2024 at 9:46 AM

avatar anyaburke

anyaburke

Last activity on 07/12/2024 at 6:03 AM

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Interested in Ankylosing spondylitis since 2024


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Many people with AS see multiple doctors before receiving the correct diagnosis. It's common for it to take several years from the onset of symptoms to get a definitive AS diagnosis @age of war


What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2024-06-07 09:17:57

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avatar agementjellied

agementjellied

Edited on 09/18/2024 at 11:13 AM

avatar agementjellied

agementjellied

Last activity on 09/17/2024 at 10:12 AM

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[This content has been moderated by an administrator for violating Carenity’s Terms of Use.] Then, all of a sudden, after a few scans and other procedures, they informed me that I had AS! I had never even heard of it before. I am currently on Cosentyx, and it has been incredibly helpful for me.


What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2024-09-17 05:52:53

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avatar hentylee

hentylee

Edited on 12/16/2024 at 12:10 PM

avatar hentylee

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Last activity on 08/29/2025 at 5:14 AM

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Patient, Ankylosing spondylitis since 2024


1 comment posted | 1 in the Living with ankylosing spondylitis group


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Games let you think about the right and wrong things you can do. A character can do good things or bad things. [This content has been moderated by an administrator.] 


What is your ankylosing spondylitis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-is-your-ankylosing-spondylitis-story-lets-share-2241 2024-12-10 05:00:46

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