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Patients Ankylosing spondylitis

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Member Carenity
Posted on

 I thought we could all gather here to discuss AS. I have read a lot testimonials from other members in the testimonial section and it feels good to realize that I am not alone in AS and not alone in experiencing and struggling with a chronic condition, like AS. 

I know there are more focused topics here on AS, but I would like to open a more general discussion with you all so that we can meet each other and better get to know each other.

I would be happy to discuss my condition with AS with you.

I hope to hear from any of you soon!

Beginning of the discussion - 12/28/18

Could we discuss Ankylosing Spondylitis
Member Carenity
Posted on

Great idea! Anyone else here struggling with losing muscle so quickly? I know it will go away because of my inactivity, but why am I becoming so weak and no muscle so quickly? what can I do?
 
 

Could we discuss Ankylosing Spondylitis
1

Member Carenity
Posted on

I am struggling with this also. It is happening so fast.

Could we discuss Ankylosing Spondylitis
Member Carenity
Posted on

Who here is suffering with nerve pains due to the detoration of our vertebrae and limited flexibility? Is everyone still able to sleep on back in bed? I still can seep in the bed most times, but it can cause me discomfort!

Could we discuss Ankylosing Spondylitis
Member Carenity
Posted on

Maria, my wife is suffering with AS for about a year but probably undiagnosed for much longer.  She is weak from inactivity but can't do PT or any real exercise due to the level of pain. She is up til the wee hours most nights and can't sleep but sleeps a lot during the day.  Not a great life.

Could we discuss Ankylosing Spondylitis
1

Member Carenity
Posted on

If you can get on Enbrel, I would recommend it.  It relieves a lot of pain.  They do have a support card with reduces the cost to something manageable.  There are downsides, but it does make life much more enjoyable.

Could we discuss Ankylosing Spondylitis
Member Carenity
Posted on

I originally tried Humira for 9 months when I was initially diagnosed, and unfortunately it made me severely depressed and the chronic hand and joint pain I couldn’t stand. I switched to Cymzia which was a difficult transition. Mood swings, weight fluctuation, crazy dreams, and lack of sleep. But after about 8 weeks I haven’t felt any better than this. Would highly recommend anyone giving Cymzia a shot! Unfortunately, due to the diagnosis it has grown my depression and still continued nerve pain. So I am also on cymbalta. I have minimal to no nerve pain left with the help of cymbalta. 

Could we discuss Ankylosing Spondylitis
Member Carenity
Posted on

I have alot of pain! I have literally don't know what to do no more. My rhuematologist is great, and she was first person to actually listen. The depression is bad. And because my husband can't see the pain he sure does not understand!! I'm on Enbrel, a fear of needles, but at this point I will try anything. I too am on Cymbalta, but they had to start Wellbutrin to try to get me over the hump.

Diagnosis was just 5 months ago. Is it ever going to get better?

Could we discuss Ankylosing Spondylitis
Member Carenity
Posted on

I was told that I have spondylosis feb 5 2019 can any one tell me what going to happen to me thanks

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