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  • Living with ankylosing spondylitis
  • You know you have AS when...
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Living with ankylosing spondylitis

You know you have AS when...

  •  104 views
  •  9 times supported
  •  10 comments

avatar nomasAS

nomasAS

08/02/2018 at 6:50 AM

avatar nomasAS

nomasAS

Last activity on 09/26/2023 at 11:23 PM

Joined in 2018


23 comments posted | 15 in the Living with ankylosing spondylitis group


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I saw this on a different site and thought it is a great idea... a way for us to make humor and laugh at our condition, despite it. Kind of as a way for us to find humor through it all.

I will start and hope this carries on...

You know you have ankylosing spondylitis when ...

... you wake up in the morning  more tired than the night before despite sleeping.

... you want you install a ramp to get you out of bed.

Keep it going.

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avatar exit

Unregistered member

11/05/2018 at 9:04 AM

Hello nomad,

I sincerely hope that you feel much better by now. Sharing with others with similar problems can be very helpful, I hope. I have detached from my longterm friends because I felt I had become my disease(s), and was not able to have conversations without talking about my chronic pain, depression and ongoing struggle with overeating, I just lost my sense of humor when my surgery for spinal stenosis was cancelled 4 days prior because my A1C ist at 10. I have had to wait 3 months to recover from knee surgery before I was given a date for my spine and wish I had been told about this criteria at that time so I could have gotten extra support to lower my sugar levels. Has anyone had a similar experience? Spinal stenosis is very painful, as most spinal conditions are, 


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2018-11-05 09:04:38

avatar rwilsonjr67

rwilsonjr67

11/09/2018 at 9:18 PM

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avatar rwilsonjr67

rwilsonjr67

Last activity on 03/16/2025 at 8:31 PM

Joined in 2018


7 comments posted | 7 in the Living with ankylosing spondylitis group


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You know you have AS when.....

You bend over to tie your shoe and not only can you not reach your foot, but you can’t get back up either. 


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2018-11-09 21:18:59

avatar DuchyCT

DuchyCT

11/10/2018 at 4:34 AM

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avatar DuchyCT

DuchyCT

Last activity on 09/15/2020 at 12:21 AM

Joined in 2018


5 comments posted | 5 in the Living with ankylosing spondylitis group


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Your chest is so tight you think you are having heart attacks, but nope, it’s just your ribs fusing, and that’s supposed to  ease your mind in some way. 


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2018-11-10 04:34:03

avatar Lee__R

Lee__R

Community manager
01/18/2019 at 1:59 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,337 comments posted | 26 in the Living with ankylosing spondylitis group

2 of their responses were helpful to members


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Hello members... @nomasAS‍ created a fun way to have humor with your condition. Feel free to participate and give an example of "You know you have AS when..."

@Monroe‍ @Cmghap‍ @Abanko‍ @Samreen‍ @JanBran‍ @Maryproia520‍ @Ktaylor3638‍ @sking6767‍ @PomMom‍ @JTom4cats‍ @katw78‍ @Csteep‍ @Altafahmad‍ @SusieC‍ @AngelSheri‍ @Salazar‍ @Gaby0412‍ @Sheilak30‍ @Vinnyo‍ @Stephanie5521‍ 


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-18 01:59:40

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avatar PamelaKoss

PamelaKoss

Edited on 01/23/2025 at 9:41 AM

avatar PamelaKoss

PamelaKoss

Last activity on 02/27/2025 at 2:05 AM

Joined in 2025

Patient, Aciduria since 2025


1 comment posted | 1 in the Living with ankylosing spondylitis group


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@Lee__R [This content has been moderated by an administrator] would be nice if this would last forever.


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2025-01-23 02:59:46

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avatar AS1218

AS1218

01/18/2019 at 2:09 AM

Good advisor

avatar AS1218

AS1218

Last activity on 02/05/2024 at 1:39 AM

Joined in 2018


56 comments posted | 31 in the Living with ankylosing spondylitis group

3 of their responses were helpful to members


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@Edelweiss70 how is your spine? Did you have surgery on it? I do not have spinal stenosis yet to that severity... but aware of it and know others that suffer from it! 

In regard to the post... well... you know you have AS when laying down flat on your back, which is supposed to be healthy for most, causes you discomfort and pain!


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-18 02:09:40

avatar AS1218

AS1218

01/18/2019 at 2:10 AM

Good advisor

avatar AS1218

AS1218

Last activity on 02/05/2024 at 1:39 AM

Joined in 2018


56 comments posted | 31 in the Living with ankylosing spondylitis group

3 of their responses were helpful to members


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@rwilsonjr67 I agree... reach over and then... wam... stuck!


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-18 02:10:11

avatar katw78

katw78

01/18/2019 at 5:00 AM

avatar katw78

katw78

Last activity on 08/18/2024 at 1:58 AM

Joined in 2018


2 comments posted | 2 in the Living with ankylosing spondylitis group


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You know you have ankylosing spondylitis when ...

You can't decide if you should try to get out of the bath or just sit there wishing you had taken a shower instead. 

Getting ready to go somewhere takes a lot longer than it used to.

You feel like a human pin cushion.

You tell people you have AS and they say "yeah, but there is nothing 2 Advil can't fix."

 

 

 

 

 

See the signature

Kat


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-18 05:00:05

avatar Kls003456

Kls003456

01/26/2019 at 4:18 AM

avatar Kls003456

Kls003456

Last activity on 09/22/2019 at 1:27 AM

Joined in 2019


1 comment posted | 1 in the Living with ankylosing spondylitis group


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I’m new here . I am often so sore all over from my neck down . I try to ignore it .  My sides are sore,  Bizarre . Trying to find out more info , Drs. Really don’t say too much about it , Just on NSAIDs.  Hand cramps , leg cramps , . I just take 3 T pickle juice to get rid of them . A day at a time. 


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2019-01-26 04:18:47

avatar Cdionne1089

Cdionne1089

01/07/2022 at 6:03 PM

Good advisor

avatar Cdionne1089

Cdionne1089

Last activity on 01/14/2022 at 2:54 PM

Joined in 2021


18 comments posted | 6 in the Living with ankylosing spondylitis group


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You know you have AS when…

crossing your legs makes your knees hurt…

your back is hunched over…

your body doesn’t agree with your mind…

you’re 32 and already lost over an inch in height…

See the signature

Crystal Rose


You know you have AS when... https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/you-know-you-have-as-when-335 2022-01-07 18:03:42

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