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Ankylosing spondylitis: talking to your family

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spond568

10/13/2021 at 12:02 PM

spond568

Last activity on 01/05/2022 at 5:43 PM

Joined in 2021

10 comments posted | 10 in the Ankylosing spondylitis Forum

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Are you all able to talk to your family about your AS? Do they believe you? Do they support you? I need advice

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Courtney_J

Community manager

10/14/2021 at 6:07 PM

Good advisor

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,339 comments posted | 23 in the Ankylosing spondylitis Forum

6 of their responses were helpful to members

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Hello @spond568‍, thank you for opening this discussion! emoticon cute

Hi everyone, how are you today?

Are you able to talk openly about your AS with your loved ones? Do they understand what you're going through? How do you talk to them about it? Have you ever had someone not believe you?
@Badbones‍ @Cdionne1089‍ @Avro560‍ @Kerryross‍ @Kanna3‍ @w2007sara‍ @JayLynn‍ @Tinamaria‍ @jrobinjrob‍

Don't hesitate to share your experiences and advice here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Ankylosing spondylitis: talking to your family https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/ankylosing-spondylitis-talking-to-your-family-3835 2021-10-14 18:07:04

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sulo167

Edited on 03/27/2024 at 12:12 AM

sulo167

Last activity on 04/01/2024 at 3:50 AM

Joined in 2024

1 comment posted | 1 in the Ankylosing spondylitis Forum

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Good site! I really love how comfortable it is on my eyes. I'm wondering how I can be notified every time there's a new post. [This content has been moderated by an administrator]

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Badbones

11/04/2021 at 2:13 PM

Badbones

Last activity on 01/06/2022 at 2:48 PM

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5 comments posted | 2 in the Ankylosing spondylitis Forum

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For me, it is important not to hesitate to speak up. Your family must support you, it is essential for our recovery

cynicalgiddy

Edited on 10/17/2024 at 9:59 AM

cynicalgiddy

Last activity on 03/08/2024 at 10:15 AM

Joined in 2023

1 comment posted | 1 in the Ankylosing spondylitis Forum

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As for my own opinion, I am willing to tell my family my current situation about AS. Because only family is the place that loves, protects and protects us. Your family will take care of you through this difficult time. [This content has been moderated by an administrator for violating Carenity’s Terms of Use.]

orabelle

Edited on 04/23/2024 at 3:50 AM

orabelle

Last activity on 05/16/2024 at 9:16 AM

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1 comment posted | 1 in the Ankylosing spondylitis Forum

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I think you should be frank with your family [This content has been moderated by an administrator]

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DejonMuller

10/16/2024 at 2:43 PM

DejonMuller

Last activity on 10/17/2024 at 12:04 PM

Joined in 2024

Family/friend of a patient with Adenine phosphoribosyltransferase deficiency since 2024

3 comments posted | 2 in the Ankylosing spondylitis Forum

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@orabelle THANKS YOU.

Edwinann

Edited on 06/15/2025 at 11:06 AM

Edwinann

Last activity on 06/15/2025 at 11:06 AM

Joined in 2025

Patient, Ankylosing spondylitis since 2025
Other condition: Aceruloplasminemia

1 comment posted | 1 in the Ankylosing spondylitis Forum

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@DejonMuller

Speaking up slope game without hesitation is crucial, in my opinion. We can't get past this obstacle without the love and encouragement of your loved ones.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

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