Patients Ankylosing spondylitis
Let's discuss ankylosing spondylitis!
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I thought we could all gather here to discuss AS. I have read a lot testimonials from other members in the testimonial section and it feels good to realize that I am not alone in AS and not alone in experiencing and struggling with a chronic condition, like AS.
I know there are more focused topics here on AS, but I would like to open a more general discussion with you all so that we can meet each other and better get to know each other.
I would be happy to discuss my condition with AS with you.
I hope to hear from any of you soon!
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Question for any females on here....
right before your period comes, do you feel abnormally worse for those few days before? that just seems to be the theme for me so i was just curious!!
answer to the question for women
the pains are worse actually before and during my period concerning me
sorry for my English, but I use a translator (I'm french)
My son had pain since he was 11 and recently his knees starting turning inward, he was in so much pain he had to use a wheel chair for long walks and when he did walk he had a bad limp. He randomly started having grand mal seizures at 15, they were really bad. At one point he was having 15 seizures a day. He is now 16 and started taking Humira 7 months ago, he now works out and plays basketball, no more limp and so much happier and stronger, no side effects that we have noticed yet. He is also on a lot of seizure meds and doctors are trying to find a connection between the two. Has anyone ever had any seizures or know of people with AS and have seizures?
I always feel excessive joint pain and fatigue around my period. Sometimes it’s worse, other times it’s better. I’ve been using heating pads and extra strength Advil to help.
I thought our latest patient interview with Yvan, someone who's been living with AS for 15 years might be of interest to you. Here's the link if you'd like to take a look: Patient Interview - Yvan
@MeganF @Joanna07 Wow I hadn't really thought of that, but I now that I think of it I always feel worse before my period too! I always feel extra tired and stiff!
My brother suffering from the same disease for more than 6 years but he just got diagnosed with it not even 1 month ago .
he has been suffering for more than 6 years and no one could feel him .
After reading all your comments I feel guilty because I didn't realize what he was and still living.
Now he's taking some medication but his doctor said there is a big probability to persue another injection drug .
I hope he get back his health and safety quickly because he still young only 26 years old and wanting to achieve his goals and continue his study as well.
please tell us if anyone from you had this disease and now he's totally okay a'd felling much better.
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