Which MS treatment is best?

55 views
2 times supported
4 comments

johan89

05/10/2021 at 12:09 PM

johan89

Last activity on 02/21/2022 at 4:51 PM

Joined in 2021

9 comments posted | 9 in the Treatments for multiple sclerosis group

Rewards

Messenger
Explorer

View profileView Add a friendAdd Write

Hi, I'm my doctor thinks I may have MS (waiting for results to come back) and I was hoping to read about some of your experiences with MS treatments.

Is there one that is "better" than the others? Are certain treatments more effective? Do some have fewer side effects?

Sorry for all the questions, I'm just overwhelmed and I'd like to try to inform myself as much as possible.

thanks a lot in advance!

All comments

Courtney_J

Community manager

05/11/2021 at 9:50 PM

Good advisor

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,339 comments posted | 96 in the Treatments for multiple sclerosis group

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hello @johan89‍, thank you for opening this discussion. I think many of understand what you're going through, getting diagnosed with MS can be a lot to process.

If you haven't had a chance to read it yet, we just recently published an article sharing Carenity members' diagnosis experience. You can find it here: MS diagnosis: Carenity members tell their story

Can anyone share their experience with MS treatments? Has a particular medicine been more effective than another?
@kymei41‍ @Frankieppp‍ @Puddin‍ @GloriaF‍ @KristaM‍ @cannon4153‍ @3llestin3‍ @Andrea16‍ @Abdisufi‍ @Auntielisa‍ @Armand‍ @Ashamaleee‍ @SCOTSGIRL‍ @britthaeg921‍ @msangeleyes05‍ @Bbw4latinlover‍ @elleyblast‍ @Kukpr63‍

Feel free to share your thoughts with us here!

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity US

Which MS treatment is best? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/which-ms-treatment-is-the-best-3347 2021-05-11 21:50:31

Close all

See the responses

BWroke

01/25/2023 at 9:10 PM

BWroke

Last activity on 06/08/2025 at 9:11 PM

Joined in 2019

14 comments posted | 14 in the Treatments for multiple sclerosis group

Rewards

Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

@Courtney_J I have been taking Tecfidera for 8 yrs. I was told by my insurance co. that they will no longer pay for Tecfidera (brand). I was getting some funding to help pay the outrages price of the drug with insurance, a little over $6000.00 a month. I went to my drug provider and was told the generic would cost $408. 00 a month. I checked for funding and NO funds are open at this time, even through MS help funds. I thought my only option was take my chances and quit taking the Tecfidera. I started doing some online research for the Generic (Dimethyl Fumarate). The costs were still around $1000.00. I saw an add for GoodRX at HEB Specialty Drugs for $37.00 a month. I thought this must be some kind of a gimmick or something. When I talked to HEB Specialty drugs it is NOT. They took my prescription and I answered a few questions and they processed everything. I was called back and told I would be getting a 90 day supply of 240mg (180)pills for $96.22 . This is with no insurance. So if you are in this situation that I was or just want to save money I highly suggest HEB Specialty Pharmacy. They are very nice and easy to talk to they make the process very easy. I will keep you posted afterI go pick up my pills and let you know how things go.

See the signature

Which MS treatment is best? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/which-ms-treatment-is-the-best-3347 2023-01-25 21:10:04

Hide the responses

GwendolynnS

Edited on 10/24/2021 at 9:23 PM

GwendolynnS

Last activity on 02/01/2022 at 9:12 PM

Joined in 2021

4 comments posted | 4 in the Treatments for multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

@johan89 I was started on Rebif(injection). It was the worst drug, IMO, to be on but they only had 4 when I was diagnosed (2009). I continued to have relapses. The pain from the injection sites were absolutely awful. Every morning after taking it the night before would feel like I had the flu. I missed a ridiculous amount of work that year I was on it. I did try Gileneya(pill) but it was only for a few months and then I switched to Tecfidera (pill). I can't remember why exactly I switched pills but I love Tecfidera! My only problem now is remembering twice a day to take it, Lol!

Which MS treatment is best? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/which-ms-treatment-is-the-best-3347 2021-10-24 17:54:44

GwendolynnS

10/24/2021 at 5:54 PM

GwendolynnS

Last activity on 02/01/2022 at 9:12 PM

Joined in 2021

4 comments posted | 4 in the Treatments for multiple sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

Which MS treatment is best? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/which-ms-treatment-is-the-best-3347 2021-10-24 17:54:56

Which MS treatment is best?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

Help shape the future of Carenity!

Articles to discover...