- Home
- Share
- Forum
- Multiple sclerosis Forum
- Treatments for multiple sclerosis
- Which MS treatment is best?
Patients Multiple sclerosis
Which MS treatment is best?
- 55 views
- 2 times supported
- 4 comments
All comments
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 96 in the Multiple sclerosis Forum
4 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
Hello @johan89, thank you for opening this discussion. I think many of understand what you're going through, getting diagnosed with MS can be a lot to process.
If you haven't had a chance to read it yet, we just recently published an article sharing Carenity members' diagnosis experience. You can find it here: MS diagnosis: Carenity members tell their story
Can anyone share their experience with MS treatments? Has a particular medicine been more effective than another?
@kymei41 @Frankieppp @Puddin @GloriaF @KristaM @cannon4153 @3llestin3 @Andrea16 @Abdisufi @Auntielisa @Armand @Ashamaleee @SCOTSGIRL @britthaeg921 @msangeleyes05 @Bbw4latinlover @elleyblast @Kukpr63
Feel free to share your thoughts with us here!
Take care,
Courtney
See the signature
Courtney_J, Community Manager, Carenity US
Close all
See the responses
BWroke
BWroke
Last activity on 12/10/2023 at 2:44 PM
Joined in 2019
14 comments posted | 14 in the Multiple sclerosis Forum
Rewards
-
Contributor
-
Committed
-
Explorer
-
Friend
@Courtney_J I have been taking Tecfidera for 8 yrs. I was told by my insurance co. that they will no longer pay for Tecfidera (brand). I was getting some funding to help pay the outrages price of the drug with insurance, a little over $6000.00 a month. I went to my drug provider and was told the generic would cost $408. 00 a month. I checked for funding and NO funds are open at this time, even through MS help funds. I thought my only option was take my chances and quit taking the Tecfidera. I started doing some online research for the Generic (Dimethyl Fumarate). The costs were still around $1000.00. I saw an add for GoodRX at HEB Specialty Drugs for $37.00 a month. I thought this must be some kind of a gimmick or something. When I talked to HEB Specialty drugs it is NOT. They took my prescription and I answered a few questions and they processed everything. I was called back and told I would be getting a 90 day supply of 240mg (180)pills for $96.22 . This is with no insurance. So if you are in this situation that I was or just want to save money I highly suggest HEB Specialty Pharmacy. They are very nice and easy to talk to they make the process very easy. I will keep you posted afterI go pick up my pills and let you know how things go.
See the signature
BW
Hide the responses
GwendolynnS
GwendolynnS
Last activity on 02/01/2022 at 9:12 PM
Joined in 2021
4 comments posted | 4 in the Multiple sclerosis Forum
Rewards
-
Explorer
@johan89 I was started on Rebif(injection). It was the worst drug, IMO, to be on but they only had 4 when I was diagnosed (2009). I continued to have relapses. The pain from the injection sites were absolutely awful. Every morning after taking it the night before would feel like I had the flu. I missed a ridiculous amount of work that year I was on it. I did try Gileneya(pill) but it was only for a few months and then I switched to Tecfidera (pill). I can't remember why exactly I switched pills but I love Tecfidera! My only problem now is remembering twice a day to take it, Lol!
GwendolynnS
GwendolynnS
Last activity on 02/01/2022 at 9:12 PM
Joined in 2021
4 comments posted | 4 in the Multiple sclerosis Forum
Rewards
-
Explorer
@johan89 I was started on Rebif(injection). It was the worst drug, IMO, to be on but they only had 4 when I was diagnosed (2009). I continued to have relapses. The pain from the injection sites were absolutely awful. Every morning after taking it the night before would feel like I had the flu. I missed a ridiculous amount of work that year I was on it. I did try Gileneya(pill) but it was only for a few months and then I switched to Tecfidera (pill). I can't remember why exactly I switched pills but I love Tecfidera! My only problem now is remembering twice a day to take it, Lol!
Give your opinion
Members are also commenting on...
Articles to discover...
![Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”](https://cdn-member.carenity.us/images/magazine/interview/multiple-sclerosis-surjeet-interview_300x220.png)
04/24/2024 | Testimonial
Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”
![Multiple Sclerosis And The Success And Side-Effects With Various Treatments](https://cdn-member.carenity.us/images/magazine/article/300x220/16.jpeg)
11/26/2018 | Testimonial
Multiple Sclerosis And The Success And Side-Effects With Various Treatments
![No One Knows What Being Diagnosed with Multiple Sclerosis Is Like, So Maintain A Can-Do Attitude](https://cdn-member.carenity.us/images/magazine/article/300x220/18.jpeg)
08/17/2018 | Testimonial
No One Knows What Being Diagnosed with Multiple Sclerosis Is Like, So Maintain A Can-Do Attitude
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
You have been subscribed
johan89
johan89
Last activity on 02/21/2022 at 4:51 PM
Joined in 2021
9 comments posted | 9 in the Multiple sclerosis Forum
Rewards
Messenger
Explorer
Hi, I'm my doctor thinks I may have MS (waiting for results to come back) and I was hoping to read about some of your experiences with MS treatments.
Is there one that is "better" than the others? Are certain treatments more effective? Do some have fewer side effects?
Sorry for all the questions, I'm just overwhelmed and I'd like to try to inform myself as much as possible.
thanks a lot in advance!