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Which MS treatment is best?

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johan89

05/10/2021 at 12:09 PM

Hi, I'm my doctor thinks I may have MS (waiting for results to come back) and I was hoping to read about some of your experiences with MS treatments.

Is there one that is "better" than the others? Are certain treatments more effective? Do some have fewer side effects?

Sorry for all the questions, I'm just overwhelmed and I'd like to try to inform myself as much as possible.

thanks a lot in advance!

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Courtney_J

Community manager

05/11/2021 at 9:50 PM

Good advisor

Hello @johan89‍, thank you for opening this discussion. I think many of understand what you're going through, getting diagnosed with MS can be a lot to process.

If you haven't had a chance to read it yet, we just recently published an article sharing Carenity members' diagnosis experience. You can find it here: MS diagnosis: Carenity members tell their story

Can anyone share their experience with MS treatments? Has a particular medicine been more effective than another?
@kymei41‍ @Frankieppp‍ @Puddin‍ @GloriaF‍ @KristaM‍ @cannon4153‍ @3llestin3‍ @Andrea16‍ @Abdisufi‍ @Auntielisa‍ @Armand‍ @Ashamaleee‍ @SCOTSGIRL‍ @britthaeg921‍ @msangeleyes05‍ @Bbw4latinlover‍ @elleyblast‍ @Kukpr63‍

Feel free to share your thoughts with us here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Which MS treatment is best? https://www.carenity.us/forum/multiple-sclerosis/your-opinion-on-multiple-sclerosis-treatments/which-ms-treatment-is-the-best-3347 2021-05-11 21:50:31

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BWroke

01/25/2023 at 9:10 PM

@Courtney_J I have been taking Tecfidera for 8 yrs. I was told by my insurance co. that they will no longer pay for Tecfidera (brand). I was getting some funding to help pay the outrages price of the drug with insurance, a little over $6000.00 a month. I went to my drug provider and was told the generic would cost $408. 00 a month. I checked for funding and NO funds are open at this time, even through MS help funds. I thought my only option was take my chances and quit taking the Tecfidera. I started doing some online research for the Generic (Dimethyl Fumarate). The costs were still around $1000.00. I saw an add for GoodRX at HEB Specialty Drugs for $37.00 a month. I thought this must be some kind of a gimmick or something. When I talked to HEB Specialty drugs it is NOT. They took my prescription and I answered a few questions and they processed everything. I was called back and told I would be getting a 90 day supply of 240mg (180)pills for $96.22 . This is with no insurance. So if you are in this situation that I was or just want to save money I highly suggest HEB Specialty Pharmacy. They are very nice and easy to talk to they make the process very easy. I will keep you posted afterI go pick up my pills and let you know how things go.

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Which MS treatment is best? https://www.carenity.us/forum/multiple-sclerosis/your-opinion-on-multiple-sclerosis-treatments/which-ms-treatment-is-the-best-3347 2023-01-25 21:10:04

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GwendolynnS

Edited on 10/24/2021 at 9:23 PM

@johan89 I was started on Rebif(injection). It was the worst drug, IMO, to be on but they only had 4 when I was diagnosed (2009). I continued to have relapses. The pain from the injection sites were absolutely awful. Every morning after taking it the night before would feel like I had the flu. I missed a ridiculous amount of work that year I was on it. I did try Gileneya(pill) but it was only for a few months and then I switched to Tecfidera (pill). I can't remember why exactly I switched pills but I love Tecfidera! My only problem now is remembering twice a day to take it, Lol!

Which MS treatment is best? https://www.carenity.us/forum/multiple-sclerosis/your-opinion-on-multiple-sclerosis-treatments/which-ms-treatment-is-the-best-3347 2021-10-24 17:54:44

GwendolynnS

10/24/2021 at 5:54 PM

Which MS treatment is best? https://www.carenity.us/forum/multiple-sclerosis/your-opinion-on-multiple-sclerosis-treatments/which-ms-treatment-is-the-best-3347 2021-10-24 17:54:56

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