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Have you tried Lemtrada for multiple sclerosis?

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xxmyye

12/06/2021 at 4:54 PM

xxmyye

Last activity on 01/26/2022 at 11:05 AM

Joined in 2021

6 comments posted | 6 in the Multiple sclerosis Forum

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Who has taken lemtrada? Is anyone else on this? Are there any side effects or anything I should know about?

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Courtney_J

Community manager

12/08/2021 at 3:39 PM

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Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

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1,339 comments posted | 96 in the Multiple sclerosis Forum

6 of their responses were helpful to members

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Hi @xxmyye‍, thank you for opening this discussion. Let me tag some other members who can possibly share with you.

Hi everyone, for those of you who have been on Lemtrada for your MS, can you share your experience? Has it been effective? Have you had any side effects? How often are your infusions?
@Brenda05‍ @mennisphiad‍ @WILLIAMSJANET‍ @blehn9042‍ @agorzelsky‍ @anitabekarr‍ @KrapothS‍ @nk2222‍ @Miamio123‍ @sammi.ray‍ @emmemm12‍ @djbehret‍ @Letschat‍ @Jwelden‍ @Rebeccaglenn‍ @HashnMemms‍ @Branden3387‍

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/multiple-sclerosis/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2021-12-08 15:39:06

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12/27/2022 at 11:35 PM

@Courtney_J Hi, I hope everyone is well! I would also greatly appreciate any insight on Lemtrada!

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WILLIAMSJANET

12/08/2021 at 9:16 PM

WILLIAMSJANET

Last activity on 06/08/2022 at 5:57 PM

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1 comment posted | 1 in the Multiple sclerosis Forum

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Hi, I have tried Rebif and Tecfidera. Tecfidera is working for me. I have had no progression for 2 years. It does cause facial flushing, and stomach upset. I take an aspirin for the flushing and I take omeprozole for the stomach upset. I make sure I take the pills twice daily at the correct times.

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J. Will

phyllis

12/10/2021 at 1:44 AM

phyllis

Last activity on 12/10/2021 at 1:41 AM

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4 comments posted | 3 in the Multiple sclerosis Forum

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What can you do for stress for MS??

xxmyye

12/17/2021 at 2:55 PM

xxmyye

Last activity on 01/26/2022 at 11:05 AM

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6 comments posted | 6 in the Multiple sclerosis Forum

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@phyllis‍ deep breathing and meditation

Rjackson

01/03/2022 at 7:08 PM

Rjackson

Last activity on 08/12/2022 at 1:27 AM

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2 comments posted | 2 in the Multiple sclerosis Forum

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@Courtney_J @Courtney_J I have done Lemtrada, First dose in 2017 second dose 2018. I am now age 63, diagnosed age 40.

Blancagirl

01/24/2022 at 8:57 PM

Blancagirl

Last activity on 03/02/2025 at 8:22 PM

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2 comments posted | 2 in the Multiple sclerosis Forum

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Has anybody tried Ampyra to help with walking? If so what has your experience been? Thank you

LizziB

03/20/2023 at 6:59 PM

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LizziB

Last activity on 04/21/2024 at 8:17 PM

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603 comments posted | 35 in the Multiple sclerosis Forum

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Hello everyone,

@xxmyye @WILLIAMSJANET @phyllis @Rjackson @Blancagirl

How are you doing today?

I see that there was a short discussion regarding treatment for MS. I wanted to follow up with this thread and let everyone know about a new feature on Carenity. You can now leave reviews for your current and past medications. https://member.carenity.us/medications

By clicking on this link you can search by condition or by the medication directly. Then follow the prompts to leave your experiences and help other members be more informed.

Take care,

Lizzi from the Carenity team

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LizziB

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