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Patients Multiple sclerosis

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Member Carenity
Posted on

Hey all,

I think most of us can agree that diagnosis of MS is not a quick process, especially when dealing with a general physician who is not really listening to your symptoms or not knowing what the diagnosis should be.

For me, it took several years to be finally diagnosed. The beggining symptoms were the feeling of fatigue and problems with my vision. Then came the numbness and tingling in my face and legs. 

I remember explaining the symptoms to my general doctor for years, but maybe because I had back pain also, the doctor did not further investigate my above symptoms. I also switched doctors, but no avail - it was the same thing!

I finally went to the ER one night because I Was getting intense electric shocks into my legs and ended up falling. When I explained that I had been having bladder issues and a severe sense of dizziness lately, in addition to the other symptoms, they immediately sent me for an MRI.

After discharge, I was scheduled to see a neurologist who performed an EMG about a month later. A few months later, after a neurological exam, a brain MRI, a lumbar MRI and puncture, and some other tests, it was confirmed to be MS.

It was a long journey, and I often felt like I would never know what was wrong with me. I hope this forum can help others searching for a diagnosis or clear up worries.

Beginning of the discussion - 5/25/18

What were your symptoms and how long did it take for diagnosis?
Member Carenity
Posted on

Did lymphocytes in the CSF have any significance? I’m still waiting on the IGG and Oligoclonal Banda but my lymphocytes are elevated. MRI of the brain was pretty typical for MS and many symptoms. Just worried about these lymphocytes. Any help?

What were your symptoms and how long did it take for diagnosis?
Member Carenity
Posted on

 I have heard that a certain aspect of them do. I do not remember much in regard to that. Hopefully someone responds with more knowledge of that.

What were your symptoms and how long did it take for diagnosis?
Member Carenity
Posted on

Someone help me I can't handle this. 

What were your symptoms and how long did it take for diagnosis?
Member Carenity
Posted on

I was diagnosed with ms last year all I fell is numbness in my legs and arms. The pain can be so severe at times it's hard for me to hold my phone anything in my hands it's like I am so tired and being in a wheelchair it's hard also. I lose my memory sometimes can't find things I just put down. I my eyesight has gotten worse, the pain in my lower back feels like I been kick and stomp on the pain is so bad

What were your symptoms and how long did it take for diagnosis?
1

Member Carenity
Posted on

For me I had relapsing remitting for years. I always seemed to feel worse in summer also which is a no brainer as heat aggravates symptoms as we all know. I had urinary symptoms too ... fatigue, mood issues .. it wasn’t until it progressed and I changed primary care physicians that I finally was diagnosed. I knew for certain something was wrong because I fell five times on a dog walk (again summer) experiencing my legs just giving out ... 

What were your symptoms and how long did it take for diagnosis?
1

Member Carenity
Posted on

I am at the beginning of this journey. I have most of the symptoms listed for MS. Fatigue, numbness/Tingling, weakness, Balance issues, Bladder/bowel problems, Pain, cognitive issues, muscle cramping and twitching. I have Lupus, migraines, depression, and fibromyalgia.  

I am scheduled to see a neurologist in January and my general mentioned testing for MS. When I started looking at the symptom list it kind of scared me.. 

What is the testing like? I feel like I might have been miss diagnosed previously.

What were your symptoms and how long did it take for diagnosis?
Member Carenity
Posted on

 @Hidden username‍ from my understanding there is no "One Test" that makes the diagnosis, but various tests that your doctor will look at and consider in the diagnosis. You will likely have a blood test done, X-Rays, and an MRI scheduled and a Nerve conduction test scheduled. Each test has its role in the diagnosis.

What were your symptoms and how long did it take for diagnosis?
Member Carenity
Posted on

@Hidden username Wow! I never knew that ... that you had fell 5 times. That must have been a very scary and frightening experience... I feel like the cold makes me stiff and achy and that the heat makes me feel inflammed! 

What were your symptoms and how long did it take for diagnosis?
Member Carenity
Posted on

The falling (for no reason) made me realize something was seriously wrong. I wasn’t really scared. I had a smart dr who listened .. of course he moved away to Chicago (he was a resident and won an award) so im back to dodos 

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