What is the most frustrating or difficult aspect of living with MS?

@Bleegrail Sorry to hear of your troubles. I am 76 with MS. My wife died 3 years ago and now I am all alone. I live out in the country in Texas. I really like it out here glad to not be in the city. I need to use a walker and I am not all that steady and have fear of falling because I can not get up on my own. I am finding more and more That the mental part of the MS is the hardest to deal with. I also wish there was a home or a meeting to go to. (I think misery likes company.) Sometimes I look around and see people that are in worse condition then I am and it makes me feel lucky that I am doing as well as I am. I got on a dating site thinking I could find a lady that could take me as I am. Well, It's all I see are women that want to go dancing or hiking in the mountains. Soo that aint going to happen. So I try to keep busy doing what I can do. Going to the mail box is a trip for me. Hope things get better for. Keep me informed. Bob

Feeling hopeless. No cure in my lifetime. No let up. No empathy for the sick and infirmed and handicapped. This is the most difficult, dealing with one's limitations.

Losing mobility is the worst part of MS. I would love to walk again and do all the things my legs want to do ie, ride a bike, drive my car, play sports etc.

I miss being able to be as social as I use to be. I am very light sensitive and don't go out as much. I also have trigeminal neuralgia so that is a beast in itself. I also get more exhausted. Now the dizzy spells are hitting me like crazy and my walking is off balance not to the point I'm necessarily going to fall yet but enough to be concerning. My vision goes in and out of focus like a camera. I'm just having to learn my limitations and it gets frustrating compared to the old me that was always on the go and now I'm always on the slow down let's smell the roses.

The most difficult thing for me right now is having MS right now and have had more pain and difficulty walking in the last couple of months! I don't have an MRI until the end of May & 6 month follow up in June!!! I just feel like It's been downhill since I had a heart attack in July 2021

It's Pretty Hard To Find Work With My MS Diagnosis. I Wan To Find Stable Work For At Least 20 More Years Of My Life.

I am celebrating my 20th year anniversary of my diagnosis on the 12th of October. It was really hard to begin with but I have been "lucky" enough to not have any major changes since my last exacerbation in 2016. I am now just like ing with the same issues and know how to deal with them. Living in the florida keys i learned how to deal with the heat so it doesn't effect the I live like it used to. Keeping hydrated and making sure to rest as much as possible is how I have been able to survive. I had a lot more issues with my MS when I lived where it is cold and there was nothing that worked when I was cold I stayed cold and in pain. In the heat I can cool off and prevent further issues