Patients Multiple sclerosis
Posted on 5/28/20 12:56 PM
Yes back to work. It's going ok. Have found I get tired more, possibly because I was not working for 6 weeks glad I only work part time. Still makes me little nervous since I'm around so many people. But I do my best to stay as safe as I can. I always wear a mask, use sanitizer, wipes and wash my hands alot. Definitely seeing there are alot of people that do not wear masks... some people do not take this virus as seriously as they should be. But I'm pretty fanatical on protecting myself.
Posted on 6/9/20 4:57 PM
How are you today?
How are you managing your MS now? Is it more complicated this time of year? Have you returned to "normal life" after these few months of lockdown? Have you noticed any changes in your MS post-lockdown? Have you been able to reschedule your appointments and resume any treatments?
Feel free to share! We are all here to help each other!
Posted on 7/3/20 1:07 AM
hello, I have been doing ok. Only venturing out to essentail places like grocery store. Will be back in the classroom if we open for the fall. Feeling we bit nervous.
Posted on 7/3/20 9:21 PM
@POSYMM Oh wow are you a teacher? What grade/subject? I can't imagine what school will be like after all of this. I'm not sure I could learn or lead a classroom in a mask all day. That would be so hard.
@Courtney_J Trying to stay safe as life goes back to normal. Doing all the things people have already said, wearing a mask, washing hands, avoiding public places as much as I can. I was able to reschedule an appointment with my neurologist that got cancelled, so I'm glad for that.
Posted on 7/4/20 12:51 AM
It's definitely a lot to consider. I am sure I will set up social distancing as best as possible. I am hoping to have students that are proponents of wearing masks. My diagnosis on occasion has come up...which will be turned into a "teachable" opportunity to educate on autoimmune disorders. 😊
Posted on 7/4/20 6:25 PM
I cannot imagine how schools will open. I only have 5 grandkids to worry about now. Our 6th and oldest grandchild is out of college and working at a full time job, now at 23. The other 5 are in middle school through high school. One is a special needs child (one of our twins). I'm thinking and praying for the teachers they will have, if schools actually reopen.
This pandemic is a once in a lifetime, almost cataclysmic occurrence, that has changed our lives and way of doing things forever. That's why I'm wondering how teachers will arrange physical or virtual classrooms. I'm sure they will rise to the occasion. They always do.
Our 3 daughters (his and mine) are all adults and married. So, we basically have only ourselves to take care of in the immediate surroundings. My hubby has COPD and I have MS, so if we get the corona virus COPID-19, we won't do too well, might possibly even die. If you watched us "prepare" to leave the house, you might have a laugh but I'm a practicing RN. So I know how to do isolation. :-D
It's July 4th and we have no plans, except to grill our burgers. I wish you all a safe and happy Independence Day. May you enjoy it with friends and family. Let's give thanks for the way our country was founded, and pray that we can get it back on track in truth and love.
Posted on 7/10/20 1:21 PM
I'm getting better
Posted on 7/10/20 1:22 PM
Posted on 1/31/21 5:50 PM
I am on a website for people with MS , some of them have already gotten the vaccine , some were just fine & some were sick for a few days. Also some refuse to get it until they see how others handle it & others just just flat out refuse to get it , scared of side effects . My MS specialist definitely wants me to get it . I have infusions every 6 months & some of the people say that you have to wait either 12 to 20 weeks either before or after the infusions . waiting to hear back from Dr about that . Also it's very difficult in MA to find out when , where & which vaccine . MA has screwed up royally with the vaccine .
Posted on 1/31/21 6:09 PM
@Bellabay12. Do you hhavhhave MS ? I have a very physical job , I work for USPS delivering the mail , I have been at this job for about 27 years, in the last 10 yrs it has gotten much harder especially since we started delivering Amazon parcels ! I went from delivering about 60 parcels a day to about 360 parcels a day ! & we have to do the job in a certain amount of time that they haven't updated much since Amazon , so you really have to push yourself because a lot of the parcels are large & you have to keep getting out & carrying them to the door. At the end of the day my legs are like rubber & a lot of the time I have the shakes . I do take meds for fatigue which helps but by the time I get home I'm wiped out . So I had to start thinking about MT physical & mental health & retired at the end of the year & applied for SSD, I was approved but you have to be out of work for 5 straight months before you get a check & then it takes like another 6 weeks to get the 1st check so money's been real tight & I've been having to dip into my 401 , I don't know why they make it so hard for people with disabilities , they're the ones who can't work & need the money right away