Follicular (non-Hodgkin) lymphoma: What is your experience?
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Is there anyone else out here with follicular lymphoma
Beginning of the discussion - 11/20/18
Follicular (non-Hodgkin) lymphoma: What is your experience? https://www.carenity.us/forum/mantle-cell-lymphoma/living-with-lymphoma/follicular-lymphoma-567What is it? have not heard about that, only hear about lymphodema , how do you know if you have it?
I have five growths on my lymph nodes that the PET Scan checking on my colon cancer accidentally picked up on. I'm to see a ENT specialist to have a biopsy done now. Is this what your talking about possibly?
Alyce Thorning
Hi Yes I have been diagnosed with non-Hodgkins follicular lymphoma. Just a watch and see approach. I feel fine. How about you?
@Maryellen Yes actually so far I do feel fine also. Of course my stomach is starting to cause me pain from colon cancer but if not for swollen glands and them lighting up like Christmas during my PET I'd never no I had a problem.
Thank you,
Alyce
Hi Just had my 3 month check up and everything looks fine. He called it lazy, has not progressed. Next appt 3 months and pet scan 6 months. Feeling fine. Thank God! Hope you are doing as well.
@Krista1353 yes I have FNHL. I’m brand new here and this is my 1st anything.
I’m on chemo- finished 4 rounds out of 6 planned. Set to complete 2nd week of March. Lots of side effects and problems but worth the benefit of knocking my cancer away for the time being. My oncologist was adamant to say twice at my last office visit when I was suddenly excited over my midway PET scan results: “but it always comes back”. That’s about the only thing I took from that appointment
@Krista1353 what is it you’re looking to discuss?
@Stacabirda I also have FNHL, diagnosed in March. I don't really have any symptoms and we're doing a "watch and wait" method too since it seems like it's slow progressing. That's awful that your oncologist talked to you like that, they're supposed to supportive, not negative... Hope you're doing alright since.
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