What is the biggest daily challenge while living with Crohn's?

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Patients Crohn's disease

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Hello everyone,

How are you today? emoticon cute

What is the biggest challenge you face in your daily life because of your Crohn's disease? Is it the symptoms? The treatments? Or even just accepting the diagnosis? Have you had to change or adapt aspects of your life because of your Crohn's?
@Russellj@frank24@Parkour18@cheryl.matthews@DustinG@Shane2109@Shoegal189@Ouraniakots@KristaAnne@Ciannajules@aaj2003@Charw2@MandiiLynne@Bsalv98@Nane89@anthonydsmith1983@Turtle1738ay‍ 

What do you think? Feel free to share here!

Take care,
Courtney

Beginning of the discussion - 7/21/20

What is the biggest daily challenge while living with Crohn's?

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@Courtney_J For me it's the cramps and fatigue when I'm in a flare that are the worst. And the way it affects me mentally. Sometimes the cramps are so bad I can't get up and it just takes it out of me. When I'm in a flare or I feel like one is coming on I'm like always in this state of high alert and stress, it really takes a toll on me. :/

What is the biggest daily challenge while living with Crohn's?

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@Courtney_J The unpredictability. I do my best to avoid problem foods and to handle my mental health so I won't trigger it, but despite all of that I can be feeling good one minute and then be running to the bathroom and writhing in pain the next. It's devastating.

What is the biggest daily challenge while living with Crohn's?

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I totally agree with @rachelle4evr‍  on the unpredictability of this disease. One day I can eat a certain food...two days later the cramps and diarrhea are horrendous when I eat the exact same thing.

Also the fatigue. Even if I sleep from 10 hours I feel like I have barely gotten any. 

What is the biggest daily challenge while living with Crohn's?

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I wonder how many get along without a GI and no meds? I've had  Crohns for 5+ yrs...I try to manage on my own.

What is the biggest daily challenge while living with Crohn's?

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I wonder how many get along without a GI and no meds? I've had  Crohns for 5+ yrs...I try to manage on my own.

What is the biggest daily challenge while living with Crohn's?

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@Sharonlcampbell I think it's nothing short of a miracle that you don't need meds. Maybe it depends on where in your GI tract you are inflamed with Crohn's and how severely. I use Cimzia (2 injections a month) and it works really well for me (3 years now.)

What is the biggest daily challenge while living with Crohn's?

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@keeppushingon Have you read up on following a Crohn's diet? I must avoid things like Red meat, pork, several different vegetables (especially your standard green leafy salad). There are many more items recommended to avoid as well.  Following this "diet" has made a huge difference in my life. I would also recommend being tested for lactose intolerance and celiac. Good luck. 

What is the biggest daily challenge while living with Crohn's?

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I have chronic diarrhea.  Everything I eat and drink goes right through.  My gastro doc and I can't find a way to treat it.  It keeps me awake at night, and really impacted my ability to socialize, work and many other parts of my life.  I had to file for disability.