Patients Crohn's disease
Topic of the discussion
Posted on 9/30/18 2:31 PM
My adult son was recently diagnosed I n the past 6 months but has resisted traditional therapy as the side affects of the meds scare him. He doesn’t believe in therapy so is emotionally struggling with this. He is prone to anxiety & stress, has a young child and is really struggling. I’ve tried to convince him to join an on- line support group but he has not done so. What can I do to help him? My heart is breaking for him.
Beginning of the discussion - 10/4/18How can I help my son with his Crohn's diagnosis? https://www.carenity.us/forum/crohns-disease/living-with-crohns-disease/how-can-i-help-my-son-with-his-crohns-diagnosis-497
Posted on 10/4/18 5:11 AM
@Linda0513 sorry to hear about your son. Did he talk to a doctor about his worries? The medications do help with establishing remissions. I would recommend him speaking to the doctor and if he is adamant about not taking medications to reach out to others through online forums and see what options they use to help manage the symptoms.
Most I know do a combo of monitoring their triggers (like anxiety and stress) which can be done with medication, counseling, time management, life changes. etc. Speaking with others diagnosed with the condition may help him get some ideas.
He could join this forum or there are numerous other forums that exist for helping.
Hope all is well.
Posted on 10/4/18 6:04 AM
@wlkfree My son has an appointment tomorrow with his Dr. His wife is going with him armed with a list of questions..... he seems so angry about the whole thing. He doesn’t believe in therapy even though we have tried to get him to see the benefits..... I’m hoping the Dr. Can talk some sense into him.....
Posted on 10/5/18 3:01 AM
happy to hear that. Keep us updated! I can understand his fear, but medication does help.
Posted on 10/5/18 3:04 AM
Hi @Linda0513 medications definitely have their side-effects. He should discuss with the doctor alll the potential side-effects that the meds which the doctor may recommend may cause. But, at the same time, the meds can help you live a more normal life.
Hope the appt goes well tomorrow. I can understand your concerns as a mother.
Posted on 10/6/18 3:15 PM
The appointment went well.... he is going to try infusion therapy but first has to have an outpatient surgery for his fistula........ fingers crossed
Posted on 10/9/18 5:12 AM
When is the surgery? Hoep all goes well.
Posted on 10/9/18 1:04 PM
Not sure now the dance with the insurance company is going on they don’t want to approve the Dr’s treatment plan because of course some bean counter knows more than the Harvard Trained Specialist......... it’s so freaking disheartening
Posted on 10/10/18 5:05 AM
@Linda0513 don't lose faith. I understand... insurance is a drag, but hopefuly the doctor can express the medical neccessity. Often they do. Is the doctor at least in network? That should help.
Posted on 10/11/18 8:57 AM
Yes and my son has good insurance hopefully it will get approved