Patients Crohn's disease
Topic of the discussion
Posted on 3/19/19 3:34 AM
Has anyone experienced severe hair loss after their diagnosis? My hair is falling out in the shower and after I brush it, more than ever. It is becoming so thin and lifeless. It is very depressing for me as I am so young and my hair used to be a great feature of mine and made me confident. Not anymore. I feel like these diseases are just stripping me from everything that was once mine. I went to a dermatologist and they said it is basically from malnourishment and stress, so there’s really no treatment until I get my disease and stress under control. Does anyone have any advice or suggestions?
Beginning of the discussion - 3/20/19Hair Loss after diagnosis with Crohn's? Anyone? https://www.carenity.us/forum/crohns-disease/living-with-crohns-disease/hair-loss-after-diagnosis-with-crohns-anyone-856
Posted on 3/20/19 2:39 AM
@Hidden username I experienced hair thinning and it would fall out as you say in the shower when I would wash my hair and run my fingers through it. I remember the hair being much mor excess on the floor and the sides of the shower.
I started to notice it more when I began prednisone and probably made it worse because I was not really taking care of my self via diet... hardly was eating because I just felt like anything I WANTED to eat I couldn't and I just got tired of it and the pain and bowel issues.
I did start supplementing with collagen (I need to look for the brand in my cabinet if you would like it), vitamins, Biotin, vitamin D, and fish oil.
Posted on 3/20/19 3:59 PM
@Hidden username sounds very similar to me... thank you for sharing. Whenever you get the chance, if you could give me the brand for the collagen :-) hope you are getting better
Posted on 4/4/19 3:57 AM
@Hidden username How are you doing with your hair? I had hair loss also. I changed to a better shampoo that is paraben and allergens free. But I can't say it has helped at all. What I do think is helping is rubbing rosemary to my scalp.
Posted on 4/4/19 8:05 AM
@Hidden username I went to the dermatologist and they said I have Telogen effluvium which is when a major life change (stress or in my case autoimmune diseases) causes the hair to go into a resting phase and the hair cycle stops only causing it to shed. Unfortunately the hair loss won’t stop until I get my disease under control and manage my stress/depression better. In the meantime I’m taking like a million vitamins, also switched to a very gentle shampoo and I just tried putting aloe Vera in my scalp. Nothing seems to help though. It’s been months and I’ve lost literally half my head of hair.
Posted on 4/23/19 4:14 AM
I have not experienced hair loss or hair thinning. I guess everyone is different. I am sorry that you are going through this @Hidden username ... I couldn't help but look at your profile and notice that you have more than one condition - was your doctor specific as to the condition that was causing it?
I can see how depression and stress will affect everything too though. I hope you are able to get everything under control soon.
Posted on 4/23/19 4:26 AM
@Hidden username I am so sorry for the delay in responding. I am happy that the doctor at least has given you a reason for your hair loss, so at least you have a knowledge of the why... have you tried the fish oil? Biotin? I know you said you are taking vitamins, but if you do research most multis do not come close too having enough Biotin. I take 500mcg a day.
Here is the link to the collagen. I bought mine from Vitamin Shoppe. It is calles Sports Research Collagen Peptides. https://www.amazon.com/Collagen-Peptides-Grass-Fed-Certified-Friendly/dp/B00XQ2XGAA/ref=pd_lpo_vtph_121_bs_t_1?_encoding=UTF8&psc=1&refRID=TC47SE4T2D9XRMK2B4WJ