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Patients Crohn's disease

Feeling lost with Crohns
Member Carenity
Posted on

@Hidden username so sorry to hear about it but glad you have the diagnosis and are on your path to controlling it.

Are you seeing a doctor that specializes in crohn's and IBS? I highly recommend that if it is possibl . 

The pain will always be there to an extent and some life medications will likely need to be made, at least temporarily. However. FLARES are when such 3ill be magnified. However, once you are able to control it, which will begin with treatment and learning about what affects your body and triggers your flares, the flares will be less often and in a way controllable.

Feeling lost with Crohns
Member Carenity
Posted on

Thank you and yes I see a GI Md.  It's just crazy to have to go through this. I guess it will get better or easier.

Feeling lost with Crohns
Member Carenity
Posted on

@Hidden username  are you on medication since the diagnosis and where are you from

Feeling lost with Crohns
Member Carenity
Posted on

I am on a steroid for my gut 1 month now. Upstate New York

Feeling lost with Crohns
Member Carenity
Posted on

I am a 55 years young female diagnosed with Crohn's last May.  Before the Crohn's I have been dealing with Grave's disease which is now in remission.  I have to agree with the other posts about feeling lost and alone.  Some loved ones seem to understand but since I do not have any symptoms that are showing I must be ok.  I am not on meds yet as I have had a few difficulties.  It has not been easy nice to know I am not alone

Feeling lost with Crohns
Member Carenity
Posted on

U are definitely not alone, and I hope you start to feel well very soon.

Feeling lost with Crohns
Member Carenity
Posted on

I am  very sorry that you are going through this. No one deserves to lose their life, career, and especially the children due to this evil disease. I totally understand what you are going threw. I  feel like my son is moving away from me but I  really don't know what to do but give him space. I  need him so much right now but I  don't want to stress him out. Hopefully we all can be support to each other. Stay strong and keep your head up.

Feeling lost with Crohns
Member Carenity
Posted on

I just got my official diagnosis last Friday and I'm feeling overwhelmed. I have been having symptoms for 7 months now but due to insurance issues and long waits for appointments, I finally have some resolution now. I just don't know what to do with it. I miss feeling normal. 

I've been on Pentasa for a week. Anyone have an idea when I might see some relief? I'm so sick and tired of feeling like garbage all the time.

Feeling lost with Crohns
Member Carenity
Posted on

Hi

Just came on this site.  Ct scan did not show chrones or UC, but I have Constant pain___no flares.  Uts 24/7 level 1O pain w spasms

Whole colon hurts, stomach too

Everywhere u press in that area.

Any advice?

Feeling lost with Crohns
Member Carenity
Posted on

@Hidden username I understand what you mean. I was diagnosed with Crohn's when I was 16, I am 60 now . My last bowel resection was 20 years ago and have been in remission since until.......you guessed it...it is back with a vengeance.  I have been on Remicade infusions and that didn't work for me and now they have me on Stellara and I don't think it is doing much either.  I have lost so much weight I look like death.  I am afraid to eat anything because it will come right out and cramping will be so bad. I  am lucky that my husband does understand the exhausting toll it takes on a body. Another thing I don't  remember last time Crohn's causing extreme arthritis.  When did that start? Or maybe I was just younger then and didn't feel it.