Feeling lost with Crohns

@Hidden username I first make sure you are seeing a GI. they found mine years ago with a colonoscopy and blood work this time . Mine did not show up on a CT. I have had mine since I was 17 and been in remission for 20 years now back big time!

I can definitely relate to feeling lost. I was diagnosed relatively young and it wasn't explained to me what Crohn's was, or how I was supposed to live with it. This is before YouTube and sometimes I was too exhausted to go to the library. I think the impact that it has on self-esteem and feelings of fear and panic and shame all need to be addressed more and as soon as the diagnosis comes through. Anyone else feeling lost sometimes?