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COPD and COVID-19: Have you had your vaccine yet?
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Courtney_J
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Courtney_J
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Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
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@pu8909 Hello Penny, thank you for opening this discussion! Let me tag some other members who can possibly share with you!
Hello all, how are you doing today?
Will you be getting the COVID-19 vaccine? For those who already have, what was your vaccination experience like? Did you have any pain or side effects? Did your doctor give you any advice or guidance about the vaccine?
@SusanBaker @mberardesco1166 @1jody256 @lwallace0628 @Margo66 @Andejohn @Wassilla @Abbeysgirl72 @Universe53 @Devildogwife @Kathy7 @RogerWi!ll @jocpd1 @Wooten @razzle5150 @RoyTruchon @Ginny13 @AdelineDellaMenefee
Free free to share with us here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
COPDme
COPDme
Last activity on 04/07/2021 at 10:28 PM
Joined in 2021
@pu8909 I got my first dose last week and waiting for my second. It went really well for me, the vaccination center I went to was super organized and everyone was social distanced. I feel a little bit tired for 24 hours but that was it! I asked my doctor before I made my appointment and he said there was nothing to worry about for COPD patients so I went for it eyes closed!
1jody256
1jody256
Last activity on 06/03/2021 at 7:39 PM
Joined in 2021
Yeppers had mine,last week,shoulder hurt for 3 days after it had it done at the v.a. clinic near me,nurse on hand explained everything real well.21 of April is the next one!
Edna60
Edna60
Last activity on 08/10/2024 at 11:40 PM
Joined in 2020
My Name is Edna im am worry i am gettin mines first vacine and i hadve end stages of COPD should i be worry anybody
ger365
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ger365
Last activity on 02/03/2022 at 1:25 AM
Joined in 2021
11 comments posted | 6 in the COPD Forum
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@pu8909 Don't have it, refuse to get it ! MY MEDICAL TEAM REFUSES IT TOO !
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CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
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cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
CarolSchmidt
@KathyA, please read what I wrote above on using oxygen. I am so, so, thrilled to have portable oxygen that gave me more of my life back. I was told in 2011 when I lived in San Miguel de Allende at 6,400 ft altitude that I needed to go on oxygen, but all I saw around town was one woman with the heavy metal canisters in a cart behind her, and that looked terrible. I moved back to near sea level and put off needing oxygen all day for another seven years, just a Bipap at night.
Finally I was huffing and having to stop every few feet even near sea level, but I still didn't want to be lugging a heavy canister behind me. I ran into an old friend who was always really active, ballroom dancing, hiking, fly fishing in rivers. And there she was with an Inogen in a backpack, doing everything she'd always done!
She showed me all about hers and the total package with machine, extra 8-hour battery, two battery chargers for house and car, carrying case, and extended warranty, was around $3,300!
Finally I saved enough for it and have loved it every minute since. I started on 2 for almost a year but had to go to 3 for every day. I switch to 4 liters a minute several times a day when I still get winded bad, and have gone up to 5 for stair climbing. I worry that I will need to go higher than 5 eventually, but I hope by then there will be sronger machines developed that go higher, though then the $500 batteries only last a few hours before needing recharging, instead of 6-8.
The portable ones now are breath-operated--you have to be breathing into the nose cannula for them to work. And my BiPap at night requires continuous flow, which the big oxygen machine Medicare covers provides, so I need both machines. Some day they may all be continuous flow and still portable.
There are cheaper, refurbished units available from the Inogen factory, too. After 1 1/2 years mine started sending strange messages and I called the factory and they sent a new one out the next day! I sent them the old one back no charge. So I am pleased with service, too.
Hope this helps you accept your machine. I am so, so happy I got mine and wish Medicare paid for everyone who needed one.(I understand in a few cases they will pay for one now, but not my particular Cigna Medicare Advantage plan.)
I bet when you go to your reunion you won't be the only one on oxygen! And everyone will be so old! The ones who are already dead and not there are the ones to think about--how many of them had COPD? Fourth leading cause of death in the US before Covid, so now we're fifth. Be glad for all the help you can get! I hope you have a wonderful reunion!
See the best comment
cbholder3
@Thakera Yes, even on Medicare it was $400+ a month. My Pulmonologist arranged for me to get it with no copay from GSK, GlaxoSmithKline, you can look up their assistance program at https://www.gskforyou.com/ Hope it goes okay for you, I am just in the process fo renewing mine for next year.
GSKForYou | GSK Patient Assistance Program
Learn how our program can assist you if you need help paying for your GlaxoSmithKline prescription medicines and vaccines, whether you have coverage or not.
See the best comment
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pu8909
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pu8909
Last activity on 03/21/2024 at 4:21 PM
Joined in 2018
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Hi all, I haven't been on in a while so I'm a little rusty.
Have any of you gotten the COVID vaccine yet? I just got the call from work that I can make an appointment to get vaccinated and I'm looking forward to it. Can anyone share what it was like? Have you had any reactions?
Thanks in advance!
Penny