Chordoma
Forum

Current topics:

• - I am feeling alone and don't have anyone to talk to
  I'm feeling alone. I dont have anyone to talk to my kids are too little and my grandparents have enough to worry about and my husband just simply doesn't want to hear it I just got the news Wednesday
• - How do you "thrive" with cancer?
  We just published an article from Anna Renault, a cancer survivor, about her experience defeating cancer 8 times (now battling her 9th) and how she thrives with cancer. You can read the article here 
• - How do you manage cancer-related fatigue?
  Hi everyone, How are you today? Cancer can often be tiring - both physically and mentally - before, during and after treatment. And for patients, exercise is likely to be last on the list of appea

Current topics:

• - What treatments have you undergone for your cancer?
  Hello, How are you today? So that we can discuss the various treatments for cancer! As you know, treatment for cancer is very broad and depends on the type of cancer, ranging from surgery, radio
• - Anyone else having a difficult time managing side effects for cancer treatments?
  I'm post single mastectomy stage 1 breast cancer. I been having one he'll of a time managing these awful side effects from, arimidex to exemestane and femara. Migraines, tendonitis, muscle spasms, joi
• - Are you satisfied with your relationship with your cancer doctors and medical team?
  Hello everyone, How are you today? Today I thought we could talk about patient-doctor relationships! Do you feel you have a good relationship with the health professionals who care for you or your

Current topics:

• - Applying for Supplemental Security Income (SSI)
  Hello I have Spina Bifida and Hydrocephalus.I have tried applying for SSI disability but have been denied because I have to work to support myself in the meantime.Has anyone experienced this and we're
• - Do you have a Bucket List?
  Hello everyone, You can call me movin_on. I am diagnosed with Parkinson's. For those of you who may not be familiar with this term, a Bucket List is a list of things that one has not done before bu
• - Head pressure
  Hello how is everyone?I have Hydrocephalus and have been experiencing head pressure since May.It's a daily thing now.Would it be advisable to see my doctor?

Current topics:

• - Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study
  Nearly half of women and one in three men are at risk of developing stroke or degenerative neurological diseases such as dementia and Parkinson's during their lifetime. Dutch researchers consider
• - Study: Air Pollution Linked To Higher Risk Of Dementia
  Alzheimer's Day is this Friday: September, 21 2018If you or a loved one is diagnosed with dementia, join the group and forum here.  Urban air pollution, mostly from vehicles, is associated with an

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

Current topics:

• - COVID-19 masks: Are you going to continue wearing a mask after you've had the vaccine?
  Hello everyone, I hope you're doing well. As the discussions continue on the end of the COVID-19 lockdown and social distancing measures, you may have some questions about the use of protective fa
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%