Patients Nervous system diseases

How do you manage your neuropathic pain?

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7 comments

madalena

12/29/2019 at 11:30 PM

My pain is 7 in 10 in the "easiest" days... I have allodynia,so I struggle with everything... I don't know what I can do to have a life more normal...

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Lee__R

Community manager

02/28/2020 at 3:03 PM

Good advisor

@madalena Hello madalena, thank you for your comment. I'm sorry you're dealing with that, here is a forum on living with chronic pain that may help you find support.

Living with chronic pain

How do you manage your neuropathic pain? https://www.carenity.us/forum/nervous-system-diseases/living-with-neurological-diseases/how-can-we-live-with-chronic-pain-1409 2020-02-28 15:03:03

Edythe

08/09/2020 at 7:16 PM

I'm looking for some relief from peripheral neuropathy that goes on for weeks at a time ans seems related to a fibromyalgia flare. No pain meds help. Any ideas?

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Edythe Anstey Hanen

How do you manage your neuropathic pain? https://www.carenity.us/forum/nervous-system-diseases/living-with-neurological-diseases/how-can-we-live-with-chronic-pain-1409 2020-08-09 19:16:47

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Stephanie.gay

05/14/2023 at 6:38 AM

@Edythe I have tried gabapentin and Lyrica. Gabapentin helped a bit in the beginning, but then I was eating them like candy trying to stop the shooting, burning pains. Then Lyrica which made me gain 70 pounds in 6-7 months. It worked better , but I'm still suffering. I'm looking for help as well. I won't take pain pills. I will let you know if I find anything. I'm sorry you are going through this, I wouldn't wish it upon anyone.

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Stephanie

How do you manage your neuropathic pain? https://www.carenity.us/forum/nervous-system-diseases/living-with-neurological-diseases/how-can-we-live-with-chronic-pain-1409 2023-05-14 06:38:48

Morgan101

07/04/2023 at 2:34 AM

@Stephanie.gay Have you tried a Tens Unit. It puts an electrical impulse into the nerves. I have been using it for over a year and it helps me.

How do you manage your neuropathic pain? https://www.carenity.us/forum/nervous-system-diseases/living-with-neurological-diseases/how-can-we-live-with-chronic-pain-1409 2023-07-04 02:34:00

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Edythe

08/09/2020 at 7:18 PM

@madalena

Have you found any help yet? The neuropathic pain is so difficult to deal with, No relief. Have you looked into biofeedback or anything like that? I have not but I'm interested in the idea of biofeedback.

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Edythe Anstey Hanen

How do you manage your neuropathic pain? https://www.carenity.us/forum/nervous-system-diseases/living-with-neurological-diseases/how-can-we-live-with-chronic-pain-1409 2020-08-09 19:18:37

Edythe

09/08/2020 at 1:07 AM

My fibromyalgia flare (and neuropathic pain) just disappeared one day - almost a month from when it started. No reason I could see. It seemed to just run its course and that was it. I'm sure it will resurface but until then, I feel so much better. This is the second time in a year this has happened.@Edythe

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Edythe Anstey Hanen

How do you manage your neuropathic pain? https://www.carenity.us/forum/nervous-system-diseases/living-with-neurological-diseases/how-can-we-live-with-chronic-pain-1409 2020-09-08 01:07:08

kiligreen

Edited on 05/25/2023 at 3:14 PM

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How do you manage your neuropathic pain? https://www.carenity.us/forum/nervous-system-diseases/living-with-neurological-diseases/how-can-we-live-with-chronic-pain-1409 2023-05-08 11:30:59

How do you manage your neuropathic pain?

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