Home
Forums
Breast cancer Forum
Treatments for breast cancer
Side effects of abemaciclib (Verzenio) and fulvestrant (Faslodex)

Back

Patients Breast cancer

Side effects of abemaciclib (Verzenio) and fulvestrant (Faslodex)

22 views
0 support
3 comments

EvaVeni

09/25/2020 at 8:08 PM

EvaVeni

Last activity on 07/11/2024 at 1:40 AM

Joined in 2019

2 comments posted | 1 in the Breast cancer Forum

Rewards

Explorer
Friend
Newsfeeder

View profileView Add a friendAdd Write

Hi, everyone. My name is Eva. I was diagnosed with Stage Four, ER + breast cancer with bone mets in November of 2012

I wasnput on Letrozole, hydromorphone and fentanyl patches from the beginning. In May of this year, I had a PET scan and an MRI of my total spine. It showed I had new progression in other places in my spine, pelvic area, left shoulder blade and now, in the base of my skull. (That is really freaking me out.) My Oncologist changed my meds to Verzenio twice a day and Fulvestrant injections once a month. Since being on this new regimen, I'm extremely exhausted all of the time and I sleep A LOT. I started getting ice pick headaches over the last week and the past couple of days have been bad. Has anyone experienced this while being on Verzenio/Fulvestrant? Or does anyone think the mets in the base of my skull is moving up into my brain?

I really need to talk to someone... I'm freaking out here. I don't know if this is something I should be worried about or if it's nothing.

I hope someone reaches out because I need a friend who understands what I'm going through. Thank you!

All comments

Courtney_J

Community manager

09/29/2020 at 5:51 PM

Good advisor

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,339 comments posted | 42 in the Breast cancer Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

@EvaVeni Hi Eva, thank you for opening this discussion and sharing what you've been going through. I'm sorry to hear you've had those side effects. Have you had a chance to talk to your doctor about what you've been going through and feeling? Let me tag some other members who may have experience with these chemo drugs.

Hi everyone, how are you doing? Have you been on abemaciclib and/or fulvestrant as part of your breast cancer treatment? Did you have side effects like what Eva has been experiencing?
@tx775204‍ @Wvmahaney52‍ @Medebar‍ @moseygoat73‍ @NancyS‍ @DeborahWalker‍ @Teonna‍ @Jane143‍ @MerylK‍ @tonibroad2‍ @catalinawoman‍ @Nikkie313‍ @Tonyakendrick‍ @honeybabedeb1‍ @Rayellea‍ @Sharon770‍

Feel free to share your thoughts and experiences here!

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity US

Side effects of abemaciclib (Verzenio) and fulvestrant (Faslodex) https://www.carenity.us/forum/breast-cancer/your-opinion-on-breast-cancer-treatments/verzenio-and-fulvestrant-side-effects-2553 2020-09-29 17:51:54

tx775204

10/02/2020 at 3:29 AM

tx775204

Last activity on 09/04/2020 at 2:13 AM

Joined in 2020

3 comments posted | 2 in the Breast cancer Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I haven't been. I am on Anastrozole. I had radiation treatments a long time ago.

Robbibiehl

06/09/2021 at 3:33 AM

Robbibiehl

Last activity on 08/26/2021 at 11:58 PM

Joined in 2021

2 comments posted | 1 in the Breast cancer Forum

Rewards

Explorer

View profileView Add a friendAdd Write

Hi my name is Robbi and I am 72 years old. I was first diagnosed with lobular Breast cancer in November 2017 and had a lumpectomy on January 2018. I was taking Anastrozole. Then in October 2020 the cancer returned as stage 2. I had another lumpectomy and chemo and 20 radiation sessions. I started on exemestane with horrible side effects. I don’t know what is next. I only know chemo didn’t work and the drug didn’t work and I feel like there is a black cloud over my head.

Members are also commenting on...

positive

07/08/2021 at 7:19 PM

@Courtney_J I am getting very nervous and scared because the surgery is July 13, 2021. My parents both died this year so I dont have them to talk to. My mom died on Feb 16, 2021 with a sickness she was suffering for 18 months so i was dealing with that for the last months and then my dad had a major stroke 3 weeks after my mom passed away and he could no longer go back to his assistance living so we had to find a nursing home. We found one he was only in there 3 weeks and then he passed away on May 6, 2021. Right after all that I was diagnosed with cancer so I have been on a train that is non-stop. I feel like I am so tried out and I dont have much energy left. My sisters are not helpful they keep telling me just pray. They both got to take 2 weeks vacation after my mom and dad passed away. I have not even had time to take a breather I am just on the train of bad luck. That is how I am feeling.

See the best comment

positive

07/08/2021 at 7:19 PM

See the best comment

Articles to discover...

02/19/2025 | Testimonial

Crohn’s disease: “Resilience is about getting up each day and choosing to keep fighting, even when it feels impossible.”

10/19/2023 | News

Why is Supportive Care Essential during Breast Cancer Treatment?

10/09/2023 | Testimonial

Paget's disease of the nipple: "Don't let waiting for a diagnosis deplete your reserves!"

11/16/2022 | Testimonial

Multiple sclerosis and breast cancer: "My care has been great!"

01/15/2019 | News

Telling patients to 'fight' cancer puts them under pressure

06/25/2019 | Advice

Breast Cancer diagnosis: Carenity members tell their story

09/06/2018 | Advice

How I Didn’t Let Cancer Stop Me from Thriving (All 9 Times)

07/12/2019 | Nutrition

Cancer and food: advice from a dietitian (1/2)

Side effects of abemaciclib (Verzenio) and fulvestrant (Faslodex)

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...