Retinoblastoma
Forum

Current topics:

• - What is your cancer diagnosis?
  Hello everyone, I hope you're doing well. This group contains many different types of cancer. Though you may have different forms of cancer, I think there is somewhat of a shared experience across
• - How do you "thrive" with cancer?
  We just published an article from Anna Renault, a cancer survivor, about her experience defeating cancer 8 times (now battling her 9th) and how she thrives with cancer. You can read the article here 
• - How do you deal with constant anxiety about your cancer?
  How to deal with constant anxiety  Ed ty

Current topics:

• - Alternative treatments for cancer
  Has anyone refused chemo or other cancer treatment for alternative or holistic methods? It's too late in my case as I'm in treatment but I don't think I've really heard much about alternative treatmen
• - What treatments have you undergone for your cancer?
  Hello, How are you today? So that we can discuss the various treatments for cancer! As you know, treatment for cancer is very broad and depends on the type of cancer, ranging from surgery, radio
• - Anyone else having a difficult time managing side effects for cancer treatments?
  I'm post single mastectomy stage 1 breast cancer. I been having one he'll of a time managing these awful side effects from, arimidex to exemestane and femara. Migraines, tendonitis, muscle spasms, joi

Current topics:

• - Eye conditions and daily life: questions, experiences, advice
  Hello everyone, How are you doing? How does your eye condition affect your daily life? Have you had to change aspects of your life or routine because of it? Have you had to give up activities you o

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

Current topics:

• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - Have you had any side effects from the COVID vaccine?
  I got mine Wednesday and have had several reactions. None on injection day but the day after, sore arm, dry mouth. Next day felt fine! Day after that had chills body aches and fever, stayed in bed and
• - COVID-19 masks: Are you going to continue wearing a mask after you've had the vaccine?
  Hello everyone, I hope you're doing well. As the discussions continue on the end of the COVID-19 lockdown and social distancing measures, you may have some questions about the use of protective fa