Retinoblastoma
Forum

Current topics:

• - My soulmate is now in Heaven
  To whom it may concern,  I joined this group at the beginning of her 14 month battle with cancer to find answers to the questions that were overwhelming. She passed away last month while on home hos
• - How do you "thrive" with cancer?
  We just published an article from Anna Renault, a cancer survivor, about her experience defeating cancer 8 times (now battling her 9th) and how she thrives with cancer. You can read the article here 
• - How do you manage cancer-related fatigue?
  Hi everyone, How are you today? Cancer can often be tiring - both physically and mentally - before, during and after treatment. And for patients, exercise is likely to be last on the list of appea

Current topics:

• - What treatments have you undergone for your cancer?
  Hello, How are you today? So that we can discuss the various treatments for cancer! As you know, treatment for cancer is very broad and depends on the type of cancer, ranging from surgery, radio
• - Anyone else having a difficult time managing side effects for cancer treatments?
  I'm post single mastectomy stage 1 breast cancer. I been having one he'll of a time managing these awful side effects from, arimidex to exemestane and femara. Migraines, tendonitis, muscle spasms, joi
• - Are you satisfied with your relationship with your cancer doctors and medical team?
  Hello everyone, How are you today? Today I thought we could talk about patient-doctor relationships! Do you feel you have a good relationship with the health professionals who care for you or your

Current topics:

• - Eye conditions and daily life: questions, experiences, advice
  Hello everyone, How are you doing? How does your eye condition affect your daily life? Have you had to change aspects of your life or routine because of it? Have you had to give up activities you o
• - Living with an eye condition: What is your diagnosis?
  Hello everyone, How are you today? I thought I would create this discussion so we can get to know one another better! There a number of disorders and diseases that affect the eyes, the most common

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

Current topics:

• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - Have you had any side effects from the COVID vaccine?
  I got mine Wednesday and have had several reactions. None on injection day but the day after, sore arm, dry mouth. Next day felt fine! Day after that had chills body aches and fever, stayed in bed and