Hey guys long time no see. I have been trying to cope with some really hard stuff, but I am feeling a bit better now.
I was wondering the other day... Did you have a say in deciding your treatment?
I feel like doctors only tell us what will 'cure' us, but never try to give us the chance to understand by ourselves what are we going to take and if we do want that or another thing...
My first Neurologist said I don't have MS and medication wouldn't help. The Neurologist I have now diagnosed me as having PPMS (She also reviewed my records from the first Neurologist) She's been great, taking the time to explain my options in detail along with her recommendation. I start infusions in early Sept.
I'm fortunate that my symptoms are somewhat mild (no pain) and there has been no progression... yet.
Did you have a say in your treatment?https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/did-you-have-a-say-in-your-treatment-19592020-08-29 11:58:30
1988MS
1988MS
Last activity on 12/27/2023 at 6:49 AM
Joined in 2018
15 comments posted | 13 in the Treatments for multiple sclerosis group
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Hey guys long time no see. I have been trying to cope with some really hard stuff, but I am feeling a bit better now.
I was wondering the other day... Did you have a say in deciding your treatment?
I feel like doctors only tell us what will 'cure' us, but never try to give us the chance to understand by ourselves what are we going to take and if we do want that or another thing...
Am I the only one who feels this way?