Logo Carenity
Logo Carenity
Join now! Log in
flag us
flag fr flag en flag es flag de flag it
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Conditions

Fact sheets
See all - Disease index from A to Z

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Home
  • Forums
  • General forums
  • Living with Multiple Sclerosis
  • Top three things that help you manage MS
 Back
Living with Multiple Sclerosis

Top three things that help you manage MS

  •  115 views
  •  5 times supported
  •  9 comments

avatar Lee__R

Lee__R

Community manager
Edited on 11/21/2019 at 4:17 AM

Good advisor

avatar Lee__R

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,337 comments posted | 84 in the Living with Multiple Sclerosis group

2 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend

  • Top chef


 View profileView  Add a friendAdd  Write

I propose to each of you to share the top three things that help you manage Multiple Sclerosis, whether it is a physical activity, a thing you participate in, a form of treatment, actions you take, people you interact with, etc.

Share your top three things here.

Follow

Other groups...

Carenity News
Feedback for Carenity
Fun and games
General Topics
Good to know
Health and Medical News
How to use Carenity
Let's talk about COVID-19
Life beyond illness
The Holiday Season
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

All comments

avatar looking4

looking4

07/19/2019 at 4:34 AM

Good advisor

avatar looking4

looking4

Last activity on 04/15/2023 at 10:43 PM

Joined in 2018


19 comments posted | 19 in the Living with Multiple Sclerosis group


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

1) honestly...sleep. constant fatigue physical and mental has it's toll so sleep is the ony think that stops my racing mind and lets me literally rest

2) mild exercise while i can bear it 

3) good pain killers lol !!


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-07-19 04:34:11

avatar suplkr1

suplkr1

07/21/2019 at 3:54 AM

Good advisor

avatar suplkr1

suplkr1

Last activity on 12/14/2023 at 11:13 PM

Joined in 2018


56 comments posted | 50 in the Living with Multiple Sclerosis group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

1) definitely sleep !!!!!! 

2) my therapy 

3) my cat Whiskers :) 


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-07-21 03:54:23
avatar exit

Unregistered member

07/21/2019 at 11:29 AM

 

1- Mental well being.  I’m taking Lexapro!  I was given the wrong medication for many years.  My mentality means a lot to me not only with dealing with the ups and down of living everyday with MS but with helping me deal with living in a nursing home at 56.  Not easy at all!  Especially when your very young at heart not to mention the death of my husband, my rock, at the age of 54.  MS has taken the most precious gifts from me!! 🥰💙👍

2- or kids

3- music! Family! Friends!  Not in that particular order on a daily basis 


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-07-21 11:29:04

avatar 1983Teresa

1983Teresa

07/26/2019 at 12:58 PM

avatar 1983Teresa

1983Teresa

Last activity on 05/09/2020 at 2:47 AM

Joined in 2019


5 comments posted | 2 in the Living with Multiple Sclerosis group


Rewards

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write

Large print daily calendar notebook.  (I call it my "brain").  Parking in the same general area if no handicapped spaces are avaivable.  Setting notifications on my phone.

 

 


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-07-26 12:58:59

avatar suplkr1

suplkr1

07/27/2019 at 7:45 PM

Good advisor

avatar suplkr1

suplkr1

Last activity on 12/14/2023 at 11:13 PM

Joined in 2018


56 comments posted | 50 in the Living with Multiple Sclerosis group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

@1983Teresa I love your recommendations. I need to incorporate your last two. I set notifications on my phone but I get exhausted and just am like ok I won't set this one, I will just remember... and you know how that goes.


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-07-27 19:45:52

avatar TheMSDad

TheMSDad

07/27/2019 at 8:47 PM

Good advisor

avatar TheMSDad

TheMSDad

Last activity on 10/13/2020 at 4:23 PM

Joined in 2019


17 comments posted | 15 in the Living with Multiple Sclerosis group


Rewards

  • Good Advisor

  • Contributor

  • Explorer

  • Newsfeeder


 View profileView  Add a friendAdd  Write

Limiting myself to three things is a difficult proposition. There is so much that can weigh you down.  Right now I am in a rehab facility after my latest wave of attacks that pushed my neuro to change my diagnosis from RRMS to SPMS.  But from what I've learned over the past 4 months of flares, hospitalization and rehab, my top 3 would be:

1. Mental strength- not just to endure the loss of what you could do, but the for chance to regain some of what you had in the past, be it walking, memory, or anything.

2. Support- There is nothing that can reinforce your recovery, or attempt like having a support system (friends, family, even your therapy staff) pushing you to do you best everyday, even if those steps are small.

3. Schedules- Use every device, application, resource you have at your disposal to keep up a constant routine.  I use my phone, tablet, and home assistant to remind me of everything I need to do, at the same time, everyday.  Plan exercise time, bed time, time to get up, medication reminders, even when to cook and eat.  Having all that constantly drilled in to my head gets annoying, but i don't miss pills, and makes sure I can keep up with a demanding 5 year old, even though he has 10 times the energy I do at all times.

I hope this helps someone out there, and if you want to chat, just message me.

See the signature

TheMSDad


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-07-27 20:47:47

avatar broadwaylady

broadwaylady

11/21/2019 at 4:49 AM

Good advisor

avatar broadwaylady

broadwaylady

Last activity on 12/06/2022 at 3:49 PM

Joined in 2018


34 comments posted | 28 in the Living with Multiple Sclerosis group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

@TheMSDad‍ excellent recommendations. Mine closely resemble yours. I will add one addition to my list... call it my top 4 :)

1) Support: support is necessary. No matter how strong your mental strength is, knowing there are others there that care for you and give you a reason to fight, is needed. They help strengthen you and encourage you to push harder. I will also add, that having a pet (dog or cat), if you are able to care for it, brings great joy to your life and also serves as amazing support.

2) Smile and find something that you enjoy: no matter what form of MS or how extreme the progression is, find something that makes you smile or brings you joy. Maybe that thing will have to change and you will have to adapt, but you need something that you enjoy - that you look forward to each day... could be as simple as watching the sun set, watching your favorite show (don't binge watch so you can have something the next day to still look forward too - a trick of mine), feeding your dog or sitting on the porch with your dog, etc.

3) Organization (scheduling): keep a routine, keep notes, and set reminders for your daily tasks: taking medicine, rehabilitation exercises, call your family/friends... it will help you stay on track and keep up despite all the effects of MS.

4) Purpose: do not loose track that no matter that condition, you have a purpose. Life changes and with that our purpose may grow... don't loose track or hope that you have a purpose! Dedicate time to yourself everyday to focus on that and work towards achieving it and being a better and stronger you.


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-11-21 04:49:00

avatar rowdymarc1

rowdymarc1

12/01/2019 at 12:58 PM

avatar rowdymarc1

rowdymarc1

Last activity on 05/05/2025 at 12:01 AM

Joined in 2019


1 comment posted | 1 in the Living with Multiple Sclerosis group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

@TheMSDad Hi newly diagnosed rrms ,I like your post good advice

See the signature

MLS


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-12-01 12:58:55

avatar BWroke

BWroke

12/07/2019 at 1:38 AM

avatar BWroke

BWroke

Last activity on 06/08/2025 at 9:11 PM

Joined in 2019


14 comments posted | 14 in the Living with Multiple Sclerosis group


Rewards

  • Contributor

  • Committed

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

@Ragoll62   Sorry for the loss of your husband. I am 73 and my wife died in August this year. I know how you must feel.  I feel very alone. I still live in our house alone.  I live in a small town and because of my condition (MS) I have not met many people and don't socialize much.  A very deferent lifestyle than I am used to. We moved out here in the country a few years ago from a bigger city.

     I hope you get to doing better.  It is a difficult journey but you need to hang in there and try to enjoy  your life as much as you can.  BW

See the signature

BW


Top three things that help you manage MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/top-three-things-that-help-you-manage-ms-1180 2019-12-07 01:38:40

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Articles to discover...

Can you train your brain to feel happier, scientifically?

06/14/2025 | Advice

Can you train your brain to feel happier, scientifically?

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

06/09/2025 | News

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

Sports and medications: 10 drugs that could harm your athletic performance

05/30/2025 | News

Sports and medications: 10 drugs that could harm your athletic performance

The fear of flare-ups: How to stop waiting for the worst and take back control

05/23/2025 | Advice

The fear of flare-ups: How to stop waiting for the worst and take back control

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

02/20/2019 | Advice

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

Telemedicine: Remote examinations and operations are here!

03/11/2019 | News

Telemedicine: Remote examinations and operations are here!

Chronic fatigue: patients' experiences and solutions

04/15/2019 | Advice

Chronic fatigue: patients' experiences and solutions

Love life in the face of illness: how to cope?

02/14/2019 | Advice

Love life in the face of illness: how to cope?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

You have been subscribed

Join now! Log in

About

  • About us
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookie management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag en flag de flag es flag it

The www.carenity.us website does not constitute or replace professional medical advice.