What do you wish people knew about MS?

122 views
13 times supported
12 comments

Courtney_J

Community manager

03/11/2020 at 4:26 PM

Good advisor

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,339 comments posted | 96 in the Living with Multiple Sclerosis group

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hello everyone,

If you don't already know, this week of March 8th to March 14th) is MS Awareness Week in the US! As MS is so complex and is an "invisible disease" (it's not always easily visible to others), many people know very little, if anything about it.

What are some things you wish people knew about MS?

The more people who are aware of MS, hopefully the sooner we will find a cure!

This discussion is yours to share your thoughts and opinions.

Looking forward to hearing from you all,

Courtney

All comments

Go to the last comment

Senator

08/22/2020 at 4:21 PM

Senator

Last activity on 12/09/2020 at 3:29 PM

Joined in 2020

3 comments posted | 2 in the Living with Multiple Sclerosis group

Rewards

Explorer

View profileView Add a friendAdd Write

Well put Candace. The big part I believe people don`t realize is the pain part. I get at times pain in my feet that is measured, by me, on a scale of 1 - 10, with 10 being most painful at an 8. I have PPMS which is the worst to have and am wheelchair bound. I try everything for pain including numerous pain medication that sometimes just doesn`t work all the time. I use the strongest CBD cream which can alleviate some of the pain. Best of luck on your journey.

What do you wish people knew about MS? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-awareness-week-2020-what-do-you-wish-people-knew-about-ms-1633 2020-08-22 16:21:35

Eistot

08/22/2020 at 10:08 PM

Eistot

Last activity on 10/21/2022 at 11:47 PM

Joined in 2020

4 comments posted | 4 in the Living with Multiple Sclerosis group

Rewards

Committed
Explorer
Friend

View profileView Add a friendAdd Write

Not even my husband can comprehend. The pain is awful. Last week went to pain management they had so many I had to sit outside in the heat when they got to where I sign in at desk I passed out. Sure fire way to get in quicker

See the signature

Carole Beasley

What do you wish people knew about MS?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

Help shape the future of Carenity!

Articles to discover...