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  • Does MS cause you to fear the future?
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Living with Multiple Sclerosis

Does MS cause you to fear the future?

  •  69 views
  •  1 support
  •  10 comments

avatar lester198

lester198

04/24/2019 at 2:21 AM

avatar lester198

lester198

Last activity on 03/15/2023 at 6:28 PM

Joined in 2018


21 comments posted | 18 in the Living with Multiple Sclerosis group


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Ever since I began to experience symptoms of MS and notice my skills and ability to perform my daily activities decline or become increasingly difficult, I have had concerns about the future. Especially once I received the diagnosis, I became even more fearful... now I had a name to put to the symptoms and the Googling began.

I am scare of the limitations that will be on my life, the increasing dependency on others, and the inability to possibly one day to take care of myself. I do not have a spouse nor kids, so I am scared of being alone or end up in a nursing home.

I am trying to do all I can to prolong this and also considering counseling to be able to address my fears.

Does anyone else go through this or am I alone?

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avatar broadwaylady

broadwaylady

04/24/2019 at 2:50 AM

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avatar broadwaylady

broadwaylady

Last activity on 12/06/2022 at 3:49 PM

Joined in 2018


34 comments posted | 28 in the Living with Multiple Sclerosis group

2 of their responses were helpful to members


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@lester198 I too have fear and I don't think you will find one of us with MS who do not. I can't tell you to not be fearful because the fear and the worries get the best of me at times, but was has helped me the most is become transparent with my condition and if I am unable to do something I will ask for help and if something becomes difficult, as long as I can do it, I will and I will not be fearful about using certain assistive devices to help me do it.


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-04-24 02:50:43

avatar lester198

lester198

04/24/2019 at 2:58 AM

avatar lester198

lester198

Last activity on 03/15/2023 at 6:28 PM

Joined in 2018


21 comments posted | 18 in the Living with Multiple Sclerosis group


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@broadwaylady‍ Thank you for writing me back. Today has just been rough and the fear I feel like I walk through alone. I wish I had someone to walk by my side... 


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-04-24 02:58:41

avatar msslady

msslady

04/24/2019 at 3:04 AM

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avatar msslady

msslady

Last activity on 05/26/2020 at 7:09 PM

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37 comments posted | 30 in the Living with Multiple Sclerosis group


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Fear is inevitable in life, especially when you MS. If I can try and help to calm your fears, I will do all I Can but I recommend to live as much as you can to the extent you can each because the fear will eat us alive.

Do not feel ashamed or the need to hide the disease. Be transaparent as broadwaylady mentioned... Yes we all want to be able to be independent forever, but even people without MS become - to a certain extent and sometimes completely - dependent. With MS, perhaps it happens sooner, but there are many devices that can allow us to be independent to a much extensive extent than in the past. Organize your house and make things easier for you to do daily... I had a friend who did not have MS, but had a limited shoulder and it caused him pain to raise his arm over his head... he had a nice head of hair, but it became to the point where it was just too hard for him and instead of being in pain everyday to do his hair, he got it shaved to a number 2 all around... It made a huge difference in his life... So I guess what I am saying is look at the small things you can change to make your daily activities easier and do not view them as losing your independence, but maintaing your independence.


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-04-24 03:04:27

avatar sfkettles

sfkettles

04/25/2019 at 8:45 PM

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avatar sfkettles

sfkettles

Last activity on 03/26/2025 at 8:00 AM

Joined in 2018


16 comments posted | 12 in the Living with Multiple Sclerosis group

1 of their responses was helpful to members


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I too have felt low and anxious about this condition especially since I was admitted to hospital because I could no longer weight bear but with help I can now transfer using a sliding board I will be getting home very soon but there have been a lot of tears along the way but laughter too I am learning to adapt I find it easier to ask for help than I used to I hope my experience will help you I'm always being told not to be so hard on myself so you shouldn't either how you feel is fine take care xx


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-04-25 20:45:10

avatar msslady

msslady

05/16/2019 at 1:56 AM

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avatar msslady

msslady

Last activity on 05/26/2020 at 7:09 PM

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37 comments posted | 30 in the Living with Multiple Sclerosis group


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@sfkettles‍ so glad you are able to transfer now and becoming confident in asking for help. I think that is one of the more difficult things that people may not consider... asking for help is not easy and it takes a while to be comfortable with it and still remain confident in yourself!


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-05-16 01:56:08

avatar padres44

padres44

07/01/2019 at 2:51 AM

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avatar padres44

padres44

Last activity on 11/08/2023 at 11:18 AM

Joined in 2018


32 comments posted | 23 in the Living with Multiple Sclerosis group

1 of their responses was helpful to members


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@lester198 yes i think we all feel that fear and uncertainty, and i know social support whether from family, friends or a loved one help each deal with it better. are there other people in your life you can lean on? also as someone else mentioned, being transparent about the disease helps, but i know for me it took some time to accept my disease before i was able to be transparent with those around me. you never know though, someone else may also be dealing with ms themselves or with ms of a loved one and can be someone that can be part of that supportive circle. 


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-07-01 02:51:30

avatar lester198

lester198

09/25/2019 at 3:36 AM

avatar lester198

lester198

Last activity on 03/15/2023 at 6:28 PM

Joined in 2018


21 comments posted | 18 in the Living with Multiple Sclerosis group


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thanks everyone for all the support - i am still having these fears but as you all mentioned -,,, it does get "easier" with each passing day or maybe i just am becoming acustomed to the changes either way - hangin in there!!


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-09-25 03:36:36

avatar clearnow03

clearnow03

09/28/2019 at 11:22 PM

avatar clearnow03

clearnow03

Last activity on 01/05/2021 at 3:08 AM

Joined in 2019


11 comments posted | 5 in the Living with Multiple Sclerosis group


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MS amay de ibccurable but it id tratable.  It may be ignorance,but I refuse to let this disease just take me like my aunt did.  When she was diagnosed they didn't have any treatments. today i'm taking copaxone and it's beengoing on 5 years and  i haven't had any eacerbations.      ipray that I don't but if i do yjere sare several options I canfollow


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-09-28 23:22:57

avatar clearnow03

clearnow03

09/29/2019 at 12:36 AM

avatar clearnow03

clearnow03

Last activity on 01/05/2021 at 3:08 AM

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11 comments posted | 5 in the Living with Multiple Sclerosis group


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I wish to point out that the fears tor the future is a narmal response to being diagnosed with MS.  I recomend a book entitled MS   and you're feelings published by ihe nationalMS society  Basically the book stares that you"re going through a narmal grieving process.  this includes feeling of anger and loss  I know that you didn't want to hear rhat you're normal but you are.               


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2019-09-29 00:36:59

avatar stellalynchh

stellalynchh

03/04/2025 at 4:37 PM

avatar stellalynchh

stellalynchh

Last activity on 03/04/2025 at 7:41 PM

Joined in 2025

Patient, Multiple sclerosis since 2025


6 comments posted | 5 in the Living with Multiple Sclerosis group

1 of their responses was helpful to members


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After my Multiple Sclerosis diagnosis 2 years ago, i stopped all the Multiple sclerosis medicines prescribed due to severe side effects, and decided look into alternative approach. My primary care provider introduced me to MS-4 Protocol from uinehealthcentre. com and i immediately started on their Multiple Sclerosis treatment, this MS-4 treatment has made a tremendous difference for me. My symptoms including muscle weakness, fatigue, mood swings, numbness, double vision and urinary retention all disappeared after the 4 months treatment!


Does MS cause you to fear the future? https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/does-ms-cause-you-to-fear-the-future-914 2025-03-04 16:37:01

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