Every person's experience with a Neurofibromatosis (NF) is unique, and that is why having a community of support is critical. In the forums dedicated to NF, you can create your own discussions and ask questions on any topic or concern regarding NF to a community of others with the same condition, caregivers, and family members and friends of those diagnosed with NF. You can also participate in numerous other discussions from other members ranging on anything from support, pain control, and coping strategies to surgeries and surgical advice.
Read the factsheet for more quick and helpful information here.
Ongoing discussions - Neurofibromatosis
- Do you have a support animal?
Hello, I have depression, anxiety, and epilepsy. Does anyone have a support animal to calm you down or in this case a trained dog for epilepsy? I've had dogs practically all my life but now my b
- How can we live with chronic pain?
My pain is 7 in 10 in the "easiest" days... I have allodynia,so I struggle with everything... I don't know what I can do to have a life more normal...
- Severe loneliness
Here is something to think about. Since the COVID -19 started, how many of you have been overwhelmed with loneliness? Now! Compound that by 59 years, YES! 59 years! During my childhood years, I was ex