Neurofibromatosis
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Every person's experience with a Neurofibromatosis (NF) is unique, and that is why having a community of support is critical. In the forums dedicated to NF, you can create your own discussions and ask questions on any topic or concern regarding NF to a community of others with the same condition, caregivers, and family members and friends of those diagnosed with NF. You can also participate in numerous other discussions from other members ranging on anything from support, pain control, and coping strategies to surgeries and surgical advice.

Read the factsheet for more quick and helpful information here.

Ongoing discussions - Neurofibromatosis

Living With Neurological Diseases

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Living with neurofibromatosis

Current topics:

- How has living with neurofibromatosis affected your daily life?
Hello everyone, We have created a new dedicated group to neurofibromatosis. For the first discussion here in the "Living with neurofibromatosis," please introduce yourself and talk about how neur

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Treatments for neurofibromatosis

Current topics:

- Have you had surgery to remove problematic growths and/or tumors? Share your experience
Hi everyone, while there is no cure at this time for neurofibromatosis, one of the more common treatments is an operation to remove problematic growths or tumors. Such an operation, and the therapy a

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Symptoms and complications of neurofibromatosis

Current topics:

- What are the most troubling symptoms and complications?
Hi everyone, Neurofibromatosis is a condition that can cause tumors to form in the brain, spinal cord, and nerves, which can cause varying symptoms and complications. What are the most troubling sy

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News and information

Fact sheet

Neurofibromatosis