Every person's experience with a Neurofibromatosis (NF) is unique, and that is why having a community of support is critical. In the forums dedicated to NF, you can create your own discussions and ask questions on any topic or concern regarding NF to a community of others with the same condition, caregivers, and family members and friends of those diagnosed with NF. You can also participate in numerous other discussions from other members ranging on anything from support, pain control, and coping strategies to surgeries and surgical advice.
Read the factsheet for more quick and helpful information here.
Ongoing discussions - Neurofibromatosis
- Applying for Supplemental Security Income (SSI)
Hello I have Spina Bifida and Hydrocephalus.I have tried applying for SSI disability but have been denied because I have to work to support myself in the meantime.Has anyone experienced this and we're
- Do you have a Bucket List?
Hello everyone, You can call me movin_on. I am diagnosed with Parkinson's. For those of you who may not be familiar with this term, a Bucket List is a list of things that one has not done before bu
- Head pressure
Hello how is everyone?I have Hydrocephalus and have been experiencing head pressure since May.It's a daily thing now.Would it be advisable to see my doctor?