Every person's experience with a Neurofibromatosis (NF) is unique, and that is why having a community of support is critical. In the forums dedicated to NF, you can create your own discussions and ask questions on any topic or concern regarding NF to a community of others with the same condition, caregivers, and family members and friends of those diagnosed with NF. You can also participate in numerous other discussions from other members ranging on anything from support, pain control, and coping strategies to surgeries and surgical advice.
Read the factsheet for more quick and helpful information here.
Ongoing discussions - Neurofibromatosis
- How can we live with chronic pain?
My pain is 7 in 10 in the "easiest" days... I have allodynia,so I struggle with everything... I don't know what I can do to have a life more normal...
- Do you have a Bucket List?
Hello everyone, You can call me movin_on. I am diagnosed with Parkinson's. For those of you who may not be familiar with this term, a Bucket List is a list of things that one has not done before bu
- How to finish getting diagnosed
It's been 2 yrs and I am not fully diagnosed with dystonia due to Drs confusion on my symptoms and tests are all clean. I stopped going cause of that but I am getting worse and I need to know what is