Topic of the discussion
Posted on 5/26/19 6:16 PM
Neurofibromatosis is a condition that can cause tumors to form in the brain, spinal cord, and nerves, which can cause varying symptoms and complications.
What are the most troubling symptoms and complications? What do you wish you could get rid of and/or change?
Beginning of the discussion - 6/1/19What are the most troubling symptoms and complications? https://www.carenity.us/forum/neurofibromatosis/symptoms-and-complications-of-neurofibromatosis/what-are-the-most-troubling-symptoms-and-compl-1043
Posted on 6/1/19 4:49 AM
This is a great question. I have NF 1, what about others? Anyone else with NF 1?
My many issues were delayed learning when I was young, permanent scoliosis, and high blood pressure, and of course cafe-au-lait spots - most prominently around my lip :(