Have you had surgery to remove problematic growths and/or tumors? Share your experience

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Patients Neurofibromatosis

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Member Carenity • Community manager
Posted on

Hi everyone,

while there is no cure at this time for neurofibromatosis, one of the more common treatments is an operation to remove problematic growths or tumors. Such an operation, and the therapy after, can be challenging and concerning.

Have you had surgery to remove problematic growths or tumors? Where was the tumor or growth? How was the operation? How was the recovery?

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Beginning of the discussion - 6/1/19

Have you had surgery to remove problematic growths and/or tumors? Share your experience
Member Carenity
Posted on

Hi Lee. Yes. I did have surgery to remove a tumor close to my spinal cord. It caused me great pain and angst... however, I go it removed. Not sure if the tumor caused it, I was younger then. But I have permanent scoliosis.